Living with facial pain is hard, but you don’t have to face it alone. Join LivingWithFacialPain.org to connect with others who understand and find the support you deserve.
Why Facial Pain Cannot Be Ignored
Facial pain is more than just discomfort—it can be a sign of an underlying medical condition that deserves attention. For some, pain may be linked to nerve disorders like Trigeminal Neuralgia (TN) or Glossopharyngeal Neuralgia (GPN). Others may experience Persistent Idiopathic Facial Pain (PIFP) or structural conditions such as Eagle …
What is Living with Facial Pain Patient Support Community?
Living with Facial Pain Patient Support Community is a dedicated patient-to-patient support community for families affected by facial pain. Living with Facial Pain Patient Support Community is powered by BensFriends.org, a network of patient support communities for rare diseases, and is run by volunteer moderators who have been affected with facial pain.
Who can join Living with Facial Pain?
Our facial pain community is open to anyone living with conditions that cause chronic or recurring pain in the face, such as Trigeminal Neuralgia (TN), Glossopharyngeal Neuralgia (GPN), Persistent Idiopathic Facial Pain (PIFP), or related disorders. We also welcome caregivers, family members, and friends who want to better understand and …
What is Facial Pain?
Facial pain is a broad term that describes discomfort or pain felt in the face, including areas such as the jaw, cheeks, eyes, forehead, or around the mouth. It can range from sharp, stabbing sensations to dull, persistent aches. While temporary facial pain may result from common causes like sinus …
Ask Questions and Start Your Own Topics
Reading posts can be helpful, but creating an account lets you share your own experiences and questions. You can start new topics and receive responses tailored to your situation. It’s a great way to feel heard, get advice, and help others going through similar challenges. Your voice matters—join the conversation …
Join the Conversation
Found a post that speaks to you? With an account, you can leave comments, offer encouragement, or share your own insights. Engaging with others helps build a supportive environment where everyone feels seen. By joining the conversation, you become an important part of the community. Don’t just read—connect and be …
Learn More About Other Members
Creating an account allows you to view member profiles and learn more about their background. You can see if someone is a patient or caregiver, where they’re from, and details about their sleep condition. This helps you find relatable stories and people. It adds a layer of connection you can’t …
Find People Like You
Looking for others with similar experiences? Member profiles help you discover people with the same condition or from your area. This can lead to more meaningful conversations and stronger support. Creating an account gives you tools to filter and find those connections. You’re not alone—find someone out there truly understands …
Send Private Messages
Sometimes you need a one-on-one conversation. With an account, you can send private messages to other members or moderators when you want to talk more personally. Whether it’s sharing something sensitive or asking a private question, messaging lets you connect in a deeper way. It’s your space to reach out …