Struggling with Facial Pain? You’re Not Alone.
Join our free, supportive community at LivingWithFacialPain.org. Connect with others who understand, share your journey, and find real support—one step at a time.
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Why Facial Pain Cannot Be Ignored
Facial pain is more than just discomfort—it can be a sign of an underlying medical condition that deserves attention. For some, pain may be linked to nerve disorders like Trigeminal Neuralgia (TN) or Glossopharyngeal Neuralgia (GPN). Others may experience Persistent Idiopathic Facial Pain (PIFP) or structural conditions such as Eagle …
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What is Living with Facial Pain Patient Support Community?
Living with Facial Pain Patient Support Community is a dedicated patient-to-patient support community for families affected by facial pain. Living with Facial Pain Patient Support Community is powered by BensFriends.org, a network of patient support communities for rare diseases, and is run by volunteer moderators who have been affected with facial pain.
Who can join Living with Facial Pain?
Our facial pain community is open to anyone living with conditions that cause chronic or recurring pain in the face, such as Trigeminal Neuralgia (TN), Glossopharyngeal Neuralgia (GPN), Persistent Idiopathic Facial Pain (PIFP), Eagle Syndrome, or related disorders. We also welcome caregivers, family members, and friends who want to better understand and support their loved ones.
Whether you’re newly diagnosed, exploring treatment options, or have been managing facial pain for years, you’ll find a safe, compassionate space to share experiences, ask questions, and connect with people who truly understand. Together, we build strength through shared knowledge and mutual support.
What is Facial Pain?
Facial pain is a broad term that describes discomfort or pain felt in the face, including areas such as the jaw, cheeks, eyes, forehead, or around the mouth. It can range from sharp, stabbing sensations to dull, persistent aches. While temporary facial pain may result from common causes like sinus infections, dental problems, or migraines, chronic facial pain is often linked to neurological conditions such as Trigeminal Neuralgia (TN), Glossopharyngeal Neuralgia (GPN), Eagle Syndrome, or other persistent pain disorders.
Living with chronic facial pain can greatly affect daily life—making it difficult to eat, speak, sleep, or even perform routine activities. Because causes and treatments vary, patients often face frustration when navigating medications, surgical options, or alternative therapies. That’s why peer-to-peer support is so important. Communities like ours provide a space where people living with facial pain can share experiences, learn from one another, and find understanding and encouragement.
Why create an account to Living with Facial Pain Community?
Ask Questions and Start Your Own Topics
Reading posts can be helpful, but creating an account lets you share your own experiences and questions. You can start new topics and receive responses tailored to your situation. It’s a great way to feel heard, get advice, and help others going through similar challenges. Your voice matters—join the conversation by signing up.
Learn More About Other Members
Creating an account allows you to view member profiles and learn more about their background. You can see if someone is a patient or caregiver, where they’re from, and details about their sleep condition. This helps you find relatable stories and people. It adds a layer of connection you can’t get from reading alone. Start connecting with others now!
Send Private Messages
Sometimes you need a one-on-one conversation. With an account, you can send private messages to other members or moderators when you want to talk more personally. Whether it’s sharing something sensitive or asking a private question, messaging lets you connect in a deeper way. It’s your space to reach out safely and privately. Join and send messages now!
Join the Conversation
Found a post that speaks to you? With an account, you can leave comments, offer encouragement, or share your own insights. Engaging with others helps build a supportive environment where everyone feels seen. By joining the conversation, you become an important part of the community. Don’t just read—connect and be heard.
Find People Like You
Looking for others with similar experiences? Member profiles help you discover people with the same condition or from your area. This can lead to more meaningful conversations and stronger support. Creating an account gives you tools to filter and find those connections. You’re not alone—find someone out there truly understands what you’re facing.
Get the Full Support Experience
Without an account, you’re only seeing part of the community. Creating an account unlocks features that let you post, connect, message, and truly be part of the group. You’ll get more out of every visit and feel more supported along the way. Take that step today—join and experience the full benefit of belonging.
Looking for Support? Find Your Rare Disease Community at Ben’s Friends.
Ben’s Friends is a trusted network of safe, supportive online communities for people living with rare diseases and chronic conditions. Whether you're a patient or caregiver, you’ll find understanding, connection, and encouragement. Visit BensFriends.org and discover a community that truly gets it.
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