Living With Facial Pain
Chronic facial pain syndromes effect as much as 1% of the population. Two of the better known conditions are Trigeminal Neuralgia (TN) and Glossopharyngeal Neuralgia (GPN) even though they are among the rarest. Pain specialists have attempted to classify other Facial Pain Syndromes by a number of names including atypical facial pain, Type 2TN, Type 7TN, Atypical Trigeminal Neuralgia (ATN), Trigeminal Neuropathic Pain (TNP) and Atypical Facial Neuralgia (AFP). Recently the term Persistent Idiopathic Facial Pain (PIFP) has been used to describe facial pain that is continuous or lasts most of a day. There simply is no consensus, even among practitioners <br>While this site continues to provide Support for TN and GPN, we have come to realize that many other facial pain patients attempt to deal with their disease within the GPN or TN communities. While there is much in common in dealing with the day to day challenges off Chronic facial pain, there is often frustration among the groups when it comes to treatments both drug, surgical and other interventions. For that reason, we have expanded our opportunities for continued Peer to Peer support to include other Chronic facial pain syndromes. We have chosen to lump them into the Persistent Idiopathic Facial Pain category, while maintaining both the TN and GPN categories.
Our mission at Ben’s Friends is to ensure that patients living with rare diseases or chronic illnesses, as well as their caregivers, family, and friends, have a safe and supportive place to connect with others like them
New Member Introductions
New members, start your experience here. Introduce yourself and share your story. Let us welcome you
Newbies Guide to Facial Pain
Included in this category are resources written by members by members and notes from the moderators. We strongly encourage all members to explore these pages. This category will grow over time to include more and more information
General Facial Pain Discussion
Open discussion about Facial Pain. If your Topic is specific to TN or GPN Please start it in those categories, otherwise please start it in Idiopathic Facial Pain
Facial Pain Treatment
Medical Treatment for Facial pain
Having a rough time? We're here to listen and support.
This is the place to discuss all the healing modalities that help you cope with Facial Pain and help you nourish your mind, body, and spirit. Please remember to discuss any new therapies you are considering trying with your physician.
Events of interest to Facial Pain Patients. Just email to have the staff add your event.
News from Bens Friends
Discussion about this site, its organization, how it works, and how we can improve it.
Recommend a Doctor, Therapist, or Clinic (Positive
Blogs (Read Only)
Although Blogs were closed sometime ago, many are worth a visit and contain some good information. We will be recategorizing some of the more recent as regular threads where appropriate.
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