One of my MANY diagnosis has been TN. I say ‘MANY’ because every dr I have seen has a differing opinion, including dental. I have a nasty growing in my brain and it has been operated on 6 times (So far) and after the first couple of surgeries I came back OK, not great but I recovered enough to return to ‘life’. Then came the 3rd operation and OMG the pain has been off the scale since. Initially I was told it was medication related, so I cutback on the meds. It wasn’t medication. Then I was told it was ‘nerve pain’, then I got a diagnosis of TN. I tried all sorts of treatments from dental to a TENS machine to hydrotherapy to Bowen therapy to acupuncture to manipulative physio to hydrotherapy and a whole chemist store of meds. None were my ‘key’.
I have found that for some TN is not well defined and sometimes when a pinpoint diagnosis is difficult TN can be a fall back diagnosis. ie if it’s not ‘A’ and it’s not ‘B’ then it must be ‘C’, with ‘C’ being TN. But TN, like nerve pain and like headaches can have many causes/effects, some of which even the dr’s have no answers for.
And still today, I have no direct answer. I just put it all down to ‘it’s just my head’. I say it’s the surgeries but the medicos won’t have any of that, their view is ‘we operated, we fixed’, but this is far from fixed.
Having tried every option for treatment, every medication I’ve got to a point where I have to accept and manage the best way I can. Some days that acceptance is easy, other days it’s far from it. The reality is we have no control over it, we have to manage the best way we can, what ever that looks like.
Just know you are not alone
Merl from the Moderator Support Team