Trigeminal autonomic cephalgia////cause by dental block... what now?

Hello all,

I wish all the very best here. These forums are awesome gift to all.

I hope to know more about this scenario, and help others..Also the legal aspects too.

Thank U

I have this scenario !

Greetings to You,

I am in Minnesota, pretty healthy 63 year old.. can't believe this.. I have sleep apnea too, It all started first week of December 2013. Getting crowns prepared. back molar right side.. the pain of that shot. It did not get better, but got worse.. and then the on set of terrible vertigo. All kinds of tests at VA. MRI, heart, ENT. finally neurology.. 2 times to to the ER, could not walk. I found my strap from apnea mask was making it worse, causing the vertigo aspect. Put padding on lower strap, no vertigo now. but every day have weird headaches that cause confusion.

I have an attorney involved now. This is a permanent injury, for the most part. Pulling medical and dental records.

Ibuprofen is my temp cure for headache, I get prisms in my eyes on occasion too. I have to learn the triggers to evade headaches.

How are you doing? Same diagnosis?

Thanks much for reply,

Gene

Xavier Artot said:

I have this scenario !

Wow, I am so sorry!

So sorry you have this problem. I had never heard this term before and had to look it up. Found a very informative article.

http://jnnp.bmj.com/content/72/suppl_2/ii19.full.pdf

Sounds horrible. The best of luck to you.

I’m sorry this happened to you,but I had something similar to you with a precrown and now have nerve damage and the tooth is gone.I’m going through lawyers like you’d change your socks,but I have a feeling your migraines will soon pass.

I have bilateral CPH Not from dental work. There several TAC’s. The above article is a good one to explain how they are related to TN. I have TN on on side and ATN on the other. I also have ON.
Verapamil controls my headaches and ability to excert myself or bend over. Tramadol Celebrex are my rescue meds. TAC’s are sometimes controlled by gout med. Indomethacin. If you can tolerate it. I can answer ? If you like. I put up some other post about how they are related to TN.

http://bjp.sagepub.com/content/6/3/102.full.pdf
This is another more informative diagnostic tool.

http://www.livingwithtn.org/group/atypicaltrigeminalneuralgia/forum/topics/the-relationship-of-tn-and-headaches-how-many-others-have

I am a member with TN and ATN...but after reading this I have to say that not do I only feel sorry for all of us sufferers...I also feel sorry for all the dentists out there!!! Actually my brother is one and I don't even tell him about all the things I read on this sight that people think may have caused their problems. I think if dentists knew all these risks they would probably all stop practicing! It is such a scary situation. We need to know more!!!!!!!!!!!

Hello,

Thanks for taking time here. Appreciate the input. When my dentist knew he was going to provide the block. He needed to advise me of the risk.. I then would have been able to make the decision to go ahead. There are other ways of doing things.. They were having a difficult time with my tongue. That was enough to make a decsion. Then, he had me come in even though i was having symptoms, and gave me another block. He knew the symptoms, he knew what was up. For me I almost died, it caused my breathing and blood pressure to go bonkers, cause it was on top of the fact that I have sleep apnea. The straps from the mask were adding to the problem of severed nerve.I have done a lot of homework here.The dental industry needs a wake up call.. We are all real people not test robots.

This has really interrupted my life.. and what else will prevail with this... Folks Need to ask questions of the dentist or doctor,, what are the potential complications???

Thank You,

Luigi

Mimi 2 said:

I am a member with TN and ATN...but after reading this I have to say that not do I only feel sorry for all of us sufferers...I also feel sorry for all the dentists out there!!! Actually my brother is one and I don't even tell him about all the things I read on this sight that people think may have caused their problems. I think if dentists knew all these risks they would probably all stop practicing! It is such a scary situation. We need to know more!!!!!!!!!!!

Thank U I will read up... Now I know that headaches of migraine type come with any alcohol consumption...



Not Again said:

So sorry you have this problem. I had never heard this term before and had to look it up. Found a very informative article.

http://jnnp.bmj.com/content/72/suppl_2/ii19.full.pdf

Sounds horrible. The best of luck to you.

I'm so sorry to hear of your problems, I hope I can offer some useful advice. I suffer with Hemicrania Continua, one of the rare TAC headaches. Continuous daily headache with severe exacerbations, eye watering, blocked nose etc. It was severely worsened by a sinus op (that I didn't need as the cause of the pain was the HC not sinus) I do have triggers - alcohol, exercise, weather, certain eye make up! I have had this for 9 years and had to diagnose myself as no specialist could find out what was wrong. Diagnosis was confirmed by a headache specialist in London who I now see regularly. Indomethacin will get rid of all the symptoms but cannot be taken regularly. I take Lyrica and I have botox every 12 weeks and usually I am symptom free with no pain. If I do have breakthrough pain I take Indomethacin and sometimes amitryptalin - helps me sleep. I am just about to start a trial of the Gammacore nerve stimulator so hopefully I wont need medication but may still need botox. Gammacore is very new in the UK so no one is sure how effective this will be but my specialist is hopeful. Unfortunately neither botox or Gammacore available on NHS in the UK for my condition (too rare!) and it is very expensive. I would say to you to find a really good headache specialist so you can get a proper diagnosis and hopefully then some proper treatment. I have found that you really have to fight to get anywhere so keep going, don't take no for an answer. Research yourself as much as you can. I really wish you all the best

Have their been any known cases on TN caused by dental work? I often wonder if the root canal I received could be the cause of my subsequent development of TN.

NavyVet

Hello

It's best if you just look at time frame of TN. When did it start.. I know my case came from dental. It hurt like hell when he gave me the shot. Then he made light of it.. Just look at the timing..

Luigii

I had to have a root canal in the area of my ATN a few months ago. I chose to have it done without anesthesia because of the risk of further damage. It was scary enough to have additional pain in that area without the fear of what a misplaced needle could do.

Thanks for info,

My dentist should have not continued care with my symptoms I was reporting to him, he knows what goes on.He just made light of it.. and proceeded. Stopped when I was having such bad vertigo that I could not make an appointment. Only then did he see that there was need to get an answer. but he never acknowledged the final diagnosis from the VA hosptital.. Too bad for me..

Best to you

TL said:

I had to have a root canal in the area of my ATN a few months ago. I chose to have it done without anesthesia because of the risk of further damage. It was scary enough to have additional pain in that area without the fear of what a misplaced needle could do.