I’ve been away from this board for a bit, enjoying having my life back since MVD surgery for Glossopharyngeal Neuralgia, here in London Ontario Canada. I am a 57 year-old male employed as a fire Captain.
To summarize, I was on Carbamazepine (200mg/day, plus Baclofen to manage muscle twitches) to manage pain for about 10 months in 2015 when the pain broke through the meds about one year ago. It delivered excruciating throat/tongue/jaw pain. Within weeks I was taking 3,000 mg/day of Carbamazepine to mitigate the pain & using Lidocaine spray in my throat often to enable talking & eating. My neurologist & local Neurosurgeon (NS) told me the highest documented dosage was 2,400 mg/day but I was clearly above that level. I was having dizziness & blurred vision at times with such a high dose, subsequently the NS offered to perform the MVD surgery ASAP.
Last Feb. 24th was the date for surgery. 3 prior MRI’s could not reveal the problem area, so the surgeon planned to use a camera that was MRI compatible and go in during surgery to find the offending blood vessel. If unable to he would cut the nerve instead of doing the MVD.
Fortunately he found the blood vessel wrapped around the #9 nerve & performed the MVD.
I was released from hospital approx. 42 hours after the 7-hour surgery. I was lifting weights within 3 weeks but did take it easy most of the time. I returned to work within 2.5 months. It took maybe 6 months for my voice to return to complete normalcy as my larynx was negatively affected by the nerve manipulation. I have been totally pain-free since the surgery. I am extremely grateful to my surgeon Dr. A. Parrent at University Hospital in London Ontario!