I have a special form of TN type 2 - namely the one that was type 2 “from the start” - i.e., I never had type 1, and therefore I never ever transitioned from type 1 (as would be the more typical scenario). Let’s call it for now “pure TN type 2”. I am not exactly sure what people here normally call this, but in the “fighting back” book this sub-category is mentioned briefly (though, sadly, not treated in depth).
While I am grateful that I never experience(d) type 1 pain, this “pure” subytpe has the disadvantage that it takes a loooong time to diagnose (nearly ten years, in my case). Anyways, I was wondering if there are members here with the same special (“pure”) subform of TN (please only answer if you do) - and if any of these have tried any form of surgery? Could you please answer here, also with information on what led you to choose that particular surgery and also, of course, how and if it helped you. Many many thanks!
P.S.: Note that, before I opened this topic, I looked and saw that there was a thread that looked superfically similar, called " Any Hope for Surgical Success for Atypical TN or Type 2?" but that thread is A) old and B) is not quite the thread that I have opened here - it would seem to include the more usual form of TN type 2 - namely the one that transitioned to type 2 via type 1. Again, I myself ave “pure” type 2: I never transitioned (since the beginning of my pain, I was always type 2).