I was diagnosed a year ago with TN by my GP, from what I can gather from everything I've read it's Type 2. I was started off on Amitriptyline, which I lasted 3 months on before the pain increased again. I was then put onto 300mg a day of Pregabalin which for about 6 months seemed to hold most of the pain at bay. However since about December time the pain has been gradually getting worse and worse. I went back to my GP who said it's time to get me referred to a specialist.
She told me if I had anyone in mind I could let her know otherwise she had a patient she referred to a London specialist recently, she would try and refer me to the same one. I've been looking online but feel I am very much out of my depth trying to hunt for people. I've looked at the list on here which suggests 2 hospitals and one specialist. I was wondering if anyone on here had anyone else they could recommend.? I know I am invariably in for a long wait but I'm not sure I can cope with the pain for too much longer before having to give up and have yet more time off work.