Thought I’d add a few things that to other people might sound crazy but I found helpful when I went through the worst attacks.
One thing, is that the pain medication originally prescribed to me with Tegretol actually triggered more things~it was Percocet. It made my nose itch which then would trigger burning on my nose and cheek so I stopped using it and it stopped~~one less “symptom” to drive me bonkers.
You can trick your “milder” symptoms by distracting the nerve. If your face is hurting along your lower jaw or feels hot then try to tap it with your fingers or get a cool (not cold it will make it worse) washcloth and place on your face. I found that putting a towel in the crisper drawer of the fridge worked great lol.
Oh, and for one of the most painful symptoms
you know the one where you feel like someone is pulling out your teeth one at a time with pliers~ drink through a straw…with tap water room temperature. I dont know why but something about a slow straw drink moved the muscles in my face or something just enough to alleviate the pain~~~even if only for a few seconds.
Also i noticed stress to be a major trigger for the more painful attacks. Calm yourself and remove yourself from whatever environment is stressing you.
When it feels like your lymphnodes seem to swell around your jaw and right under your ear
microwave a washcloth for maybe 20-30 seconds and press it right under your ear it will help. DONT use a heating pad its too hot and will possibly trigger a more severe attack~the correct heat is somewhat of a trial and error so be cautious trying that.
If your lips start burning
nibble themit normally will make it stop and just sort of itch instead.
there really is no help. Muscle relaxers, midol, and your prescribed medication will help somewhat but Ive learned you pretty much have to wait it out its helpful to cover your eyes blocking out all light and try to fall asleep til its over so if your at workleave. Trying to stick through it will just make you sicker.
there is nothing you can do to help honestly since its not really in your ear that hurts you just feel like it isits actually nerves that run right beside it. DONT use earache drops and etc it just adds a new annoying sensation lol.
I wish I had tips for the electric shock attacks
but I havnt been able to find anything to help those other than taking a sleeping pill and trying to sleep through the worst of them. All the reports that state they dont believe you have symptoms while you sleep and etc are NOT TRUE. I found that the WORST of my attacks seem to happen very late at night or early in the morning. My husband has woken me up many nights because i was in pain in my sleep~In the beginning I woke up when it would be really painful but now I sleep through it most of the time~~~You will realize the longer you suffer from this the higher your threshold for pain is.
Wow that was alot longer than I intended it to be lol…so I’ll stop here.