Hello Everyone...It has been a long time since I have visited Living with TN website, about three years...Here is my story.... After discovering I had TN I elected to go the "non invasive route" and had Gamma Knife surgery in an attempt to tame the TN beast. It was worthless and did not help ease pain at all. Then, over a period of a few years, I have three Glycerol surgery injections into the offending nerve area of my brain.....None of the above worked very well.....By 2010 I was desperate and elected to have MVD surgery performed at USC in Los Angeles....After surgery I was pain free for just six months but the TN came roaring back full force...I was so depressed and in so much pain I wanted to die..USC doctors told me they could not help me as the MVD had failed..They suggested that I have electric pulse wires placed into my face. These wires would be connected to some sort of battery that when an attack came I would press a button and it would reduce the pain attack..I am not joking..I declined of course...On November 29th 2012 I had another surgery, this time at Scripps in San Diego..."Cut the Nerve" surgery I call it...They dug into my brain and severed the bad nerve, they also discovered deeper down another damaged nerve and cut that one too. Lots of the damage may have been caused by the Gamma Knife surgery Im told....I had much advice before I decided to have the nerve actually severed, most of it totally negative and against doing such a terrible thing. But pain has no friends and I was desperate and knew I had nothing to lose....
So I had the surgery anyway and guess what ? I have my life back....It has been over THREE YEARS now and I have been totally pain free, with side affects, yes, but they are much easier to live with then TN.
Since surgery my life is in full speed ahead mode and I am pain free baby.....I also now enjoy four new grand kids, a wonderful wife who bought me a brand new diesel pickup truck that I can drive cause I have no more TN attacks...If you have any questions please feel free to ask me as I have traveled a long long TN road.
February 23, 2016