I have been dealing with atypical bilateral type TN2 for the past 6 months. I used every drug out there to try and treat this and only found relief from Tegratol but it caused such joint and musclular pain along with severe stomach pain I had no choice but to go ff of it. However, once off of it I found that my pain level had decreased down to a level that was tolerable without any meds. Which has been a blessing because I have been unable to get into to see the new neurologist until later this month and my old neuro has given up on me and sent me out the door. I am hoping to be able to start the one drug left that I have not tried which is Trileptal and praying that it will not treat me the same way as Tegratol. I am also not a candidtate for anytype of procedure.
Here is the question, as of three days ago the pain has been slowly creeping back, with pressure in the ear, and a feeling of fullness and pressure on that same side of my head and dizziness. As of today the pain is now ramping up, I am so dizzy that I cant walk without help, for fear of falling over and bending over makes me really dizzy and sick. I am also sick to my stomach and feel as though I can barely hear out of my ear. Do any of you get the head pressure, dizziness, nausea, and hearing difficulties from your ATN?