Does anyone have any advice or personal experience with these three conditions?
I’m a 40 year old male whom has probably had temporal arteritis for a very long time (imho, since being a teenager), which has likely resulted in PR and likely led to TN. I have only recently seen a Neurologist and currently waiting for results of MRI tests but luckily I now have an active case manager to be my main advocate whom informed me about TA and PR two days ago and it is a logical diagnoses. So maybe now I will get all the relevant tests to help manage my symptoms and allow me to have some sort of normality, even if it’s just being able to go for a walk and to start working again.
Any advice would be helpful as I continue to try to find out what is actually happening within my body and to gain an actual diagnosis/es but unfortunately, it appears, my age and gender probably causes these diagnoses to be overlooked.
Thanks for reading,