I am male 40 yrs old from Romania. My english is not so good so please excuse misspelling.
Since June 2016, I felt a diffuse pain in throat on the right side.
The pain was DAILY only on the inside of the pharynx at a fixed point and in the right amygdalian fossa especially when rotating head to the rihgt.
I was ok in the morning but after 1 PM symptoms come back every day.
On a scale of 1-10, the pain felt about 2 - 3.
I was consulting an ENT and he said I had a chronic pharyngitis and gave me some blood tests to do. All blood tests were good including ASLO VSH CRP
The pain persisted, I have been to countless ENT controls but nobody has detected anything wrong except for an alleged chronic pharyngitis.
I did 5 fibroscopies, 4 MRIs, 1 angio-MRI HEAD, 3 Cervical MRI.
Symptoms have worsened and throat pain inducing paraesthesia in the mandible, neck, ear on the right, shoulder and neck on the right side.
Also paresthesies at the tongue level.
Symptoms worse when I turn my head to the right and seems to come from the right tonsil or right inside the tonsil.
Also, the right tonsil is swollen at the top.
All exudates i made, the results were negative.
I have not discovered any factor that would trigger these states, nor any factor to improve them.
MRI found bilateral small enalrged reactive laterocervical lymph nodes .
In October 2016, a submandibular palpable swollen lymph node appeared on my right side followed in December 2016 by a palpable swollen lymph node at the jugulodigastric level on the right.
I followed treatment for 10 days with antibiotics: Zinnat, 7 days with amoxicillin, 5 days with sumamed. The pain in the throat did not disappear and the lymph nodes remain swollen.
Paresthetic sensations have begun to improve, but the right side throat pain is very pronounced.
I was reffered to a neurological consultation where I was sent to the psychologist.
Following my consultation, I was prescribed Lorazepam and Xanax . Xanax did nothing but all my pain was gone with Lorazepam only 1/2 pill 0,5 mg .
I was also told that swollen lymph nodes should be investigated in hematology, not the psychiatrist.
Following the numerous ENT controls at Dr. Sarafoleanu, he decided to do right tonsil cryptolysis.
I did the cryptolysis but the lymph nodes and the pains did not disappear and did not improve.
I have been treated with non-steroidal anti-inflammatory drugs for over 30 days but none have had no influence on pain ,paraesthesis and lymph nodes.
Repeated ALL blood tests , all normal !
Hematology consult - nothing wrong .
A calcified tonsil stone came out of my right tonsil. The stone was about 1 cm long , banna shaped and was rough and verry sharp, like sand paper.
After a short period of relief, all the pains came back and in January 2018 i was sent for a tonsillectomy.
CT scan rouled out Eagle Syndrome
MRI Cervical spine found small cervical discopathy C4-C5 vertebrae with no radiculopathy no compression and no protrusion .
I had billateral Tonsillectomy
All the symptoms worse by 20%
My daily simptomps are - ONLY ON THE RIGHT SIDE
Fixed point pain pharynx near right tonsillar fossa - note 4 - 5
Pain under the ear, behind the ear and in the ear note 2 - 3
Pain and inflammation of the sternocleidomastoid muscles and trapeze especially when turning the head to the right or rotation + inclination on the back note 5 - 6.
Mandibular pain and mandibular joint 4 - 5.
Pain in the right side of the hyoid bone
Clavicle, shoulder, first part of the right arm as note 4 -5.
Under Arm 4 - 5
Pain and paresthesis in the tongue, under the tongue, in the right tonsillar fossa in the spot where the tongue insert in the mouth (lingual tonsil area) 5 -6
swollen submandibular lymph node on the right, swollen right jugulodigastric lymph node, right neck on mastoid, behind right ear.
Numbness of the skin in the parotid area, right mandibular joint.
In some days, due to these symptoms I’m physically bad !! I feel sick !
Pain and pharesteis are in the deep structures of the neck not on the surface.
Symptoms occur in turn or all at once but none disappear.
WHAT MAKES MY SYMPTOMS WORSE
Wearing the motorcycle helmet tied under my chin
Strong and tall collars rubbing on my right side of the neck
The hour - after 1 PM the evening being the worst.
SHAVING (with razor blade or electric machine)
Blocking head rotation to the left by hand produce stabbing pain like somthing sharp is cutting my throat in the area where the pain is comming from and in the right ear.
Physical activities aggravate the pains at the level of the right shoulder, the cervical column on the right and the deep neck structures on the right causing
a kind of bad feeling, the splinter in the whole body without being physically exhausted!
WHAT WILL IMPROVE MY SYMPTOMS
In the morning a fell PERFECTLY FINE ! But as the day goes on , i fell bad , especially after 1 PM.
Eating and swallowing (disappear both pain and paraesthesia during the meal), liquor drinking does not have the same effect and chewing gum.
Getting drunk lower my pain .
Massage of painful areas in the pharynx with an exudate harvesting stick.
Staying with a wide open mouth improves pharyngeal pain
Keeping my right shoulder elevated or close to my right ear
Lying in bed with my head on the pillow
If a stay too much in bed, i have to get up to lower the pain if i stand up to much i have to lay down to ease the pain.
Standing in the chair with elbows on my desk and leaning over the desk with my head
Does this symptoms sound like TN2 or Glossopharingeal neuralgia ?
Nobody can tell me what is wrong with me.
My ENT diagnosed me with Glossopharingeal neuralgia but i think i have Trigeminal neuralgia .
ENT abbandoned me saying that there is nothing he can do for me and he reffered me to a neurologiyst and a pain speciallist.
I think all this nightmare started becouse of the calcified tonsil stone that rubbed and cut inside my tonsil. Now i dont have tonsils but the pain is still there and is worse.
I cand find small relief from lorazepam , oxycodine and tramadol but i dont like the side effects and diziness so i suffer like an injured dog every day for 2 years .
Dos anibody have this symptoms ?