Hi everyone, I have suffered from sinus infections and sinuses, allergies etc including bronchitis and pneumonia. In Jan 2010, I had sinus surgery, I’ve had some dental work, root canals, one bridge and cavity fillings. In 2015, I was diagnosed with TN. I kept going to my dentist who took many xrays, checked my teeth, removed bridge & replaced it and found that there was nothing wrong with my teeth. He suggested I go to my primary dr because he suspected TN and needed a referral to a neurologist. That was 2015. Prior to 2010, I had oral surgery in 1997, where they removed supernumerary teeth. Two baby teeth that never grew. I read somewhere that dental work, surgeries or even sinus surgery could be what causes TN in the long run. About 2014, I almost went through the TMJ surgery, canceled because I was afraid of the procedure. Between 2015 and last year up to October I had sporadic pain lasting sometimes from days to s couple of days. The pain was sudden and lasted seconds but felt like an eternity. Late 2016, I had s new bridge put on and told the dr about my TN I was feeling the tingling sensation that you get minor pain and the anxiety that I knew I was going to get it. She told me if I had any problems or pain to tell her. She numbed me pretty good and let me tell you I did not have any pain or symptoms for approx 11 months. In remission for a long time. By October 2018, I felt I’ll got sick after the flu shot prior to that my ears kept getting blocked. My cold last four weeks, then a cough, by late October I was in pain with TN the worst pain I’ve ever been. Excruciating psin. I was on oatmeal, mashed potatoes and soft foods. I eventually went to see my dr gave me carbamazepine (tegretol) 100mg, 2x a day. My sinuses were still plugged, ears, no sense of smell, or taste. By Xmas eve I took Sudafed and started to feel so much better along with the carbamazepine. Thinking it was related to my sinuses which I think it’s still related, I got off carbamazepine cold turkey, by dec 26, I was crying in my bed in excruciating pain. The pain cane back 100 times stronger. Needless to say, I’ve been out of remission and feel hopeless because I haven’t had TN this long (3monyhs already) consistently, everyday. The worst part I’ve had to up on my dose and now I take 300mg a day because it is true the meds start wearing off. To this date I’m still fighting a sinus I infection hit antibiotics and hopefully I get rid of it. I’m hoping for a miracle that it is related to my sinuses but for now, I have to continue taking more meds until I see the neurologist and even then I don’t know if he will recommend the MVD which I ultimately want. I don’t want to go the rest of my life incapacitated per say, I am unable to live my life like a normal person, I can’t eat, chew, slurp, touch my face, wash my face, talk, have a conversation with someone without holding my cheek or making funny faces when I talk. I’m normally a very active person so unable to work our is making me very depressed let alone keeping myself away from my family, friends and people I would like to socialize with. It’s pretty sad. I hate this disorder and not sure why I got it. They say it’s nerve damage but I always wonder why? What about people that play contact sports, boxing, football etc and I get nerve damage? I’ve also read it’s lack of vitamin B6,2,12 thiamine so I started on Vitamin B injections and take s tone of vitamin bs and lecithin but I think the damage has been done unfortunately I’m hoping to hear from some of you. Is it sinuses, sinus surgery, dental work, lack of vitamins? Etc… I’m willing to try anything that’s his bad this pain is. I literally sit at the table and try to eat cream of wheat, oatmeal with difficulty. Very frustrating. I don’t have as many headaches as some of you. I do have the facial pain, scalp, nose, cheeks etc. my TN pain travels from my head to my lower jaw/teeth. Unbearable. I’ve tried heating pads and I’m about to try tooth ache medication. I’m wondering if the numbing from the last time I went to the dentist helped with being in remission. Anyway, hopefully Someone can shed some light.
This is going to sound crazy, but try ice packs. I think it has something to do with the numbing sensation of cold that ends up helping in some cases. I love my gel cold pack for flares.
Try a lidocaine patch. In the USA and Canada you can get some at the drug store under the name SalonPas. I cut the patch into strips and place the strip along the nerve branch that’s firing. For me it’s been a miracle.
You should at least try Charlotte Web
CBD oil. It works well for my TN2 but not for TN1 in my case so far.
Thank you! I will definitely try the Sal on pas. I have heard of them but never thought of using them for my TN.
Thank you! I actually went on a website for medical marijuana and thought if it worked for the little baby with seizures I think it should work on my TN and they named it after the baby Charlottes Webb. Thank you so much I will definitely look into this as well. I wrote down the doctors closest to me that would give me a medical marijuana card.