Hi Veronia, are you taking any med now? Did you every think about having the sergury? Do you still have pain attack? Have you been to the dentisit?You know it funny, How I have neet people who has had TN took med and never had an attacks in years. Then I meet people who has been dealing with this awful disorder for years. I am a Fashion Designer, My Life consisit of traveling, until I get this under controll I stay in the house. I am in Ohio and it is cold here now, If I have to go out side I bundle my self like the un-bomber. (lol) Yes I agree with you about eating the right foods, As I look past my life. My eating was bad I gain 100 Ibs with in 4 years my dr keep telling me I need to lose weight, and I yeal a lot at my husband, to the point I would give my self headach But I am taking your advice, I went an brought me a juicer, to make healthy green smootherand I am getting into Holloist Healing, Like you say it the mind body in soul. I do have a excellent support system, Some time they are tooo suppoted I will be more than happy to share my family with you(lol). If I fall asleep in the chair my husband panic (lol). I am a frighter, I am going to beat this thing. I am not sure where Redding is but if you are in Cleveland you and your son is more than welcome to share TG with us…My Family is a Hoot you will be laughting all day I hope I didnt bombard you with all these questions. Thank you
Veronica Yee said:
I hope your pain can be conrolled or just disappear. Maybe start seeing foods that are good against your immune system and brain. I feel eating organic food and products in every aspect of today’s life is inportant. to substain your immune system. I feel if I have taken care of myself better comsumption wise, I may not have t his. What happens if there is a certain pesticide or chemical added or hormone treated food can cause this on people who do have a weak immune system? I don’t know what causes and your doctors don’t either and they will just pump you up with drugs. Hindsight, the only thing I did not do was to change my eating habits when I could eat of course. There are certain organic foods that can provide more nutrition to your brain.
I had my first pain on my right, upper lip to my ear (v2) nerve in 2000. Three things I wished, I would have seek out a healther, organic lifestyle, dump my BF and stay stress free as much as possile. One other thing, have a good support system. No one understood how painful this is and just pushed it as I was overreacting.
I went on Teterol too but I could not tolerate it, I forced myself to a higher dosages but I could not function. I became irriated, angry and confused all the time and went into isolation. Then, the med stopped working. I couldn’t hande higher dosage higher than what I was taking. I switched abd tried over a dozen, different types of seizure meds, and they all made me feel even worse. However, Neurotin had the less side effects but it did help only for a very short time, a couple momths, no matter what dosage I took.
I don’t know if it can go away without treatment, Like I said, I had it since 2000. For ME, it got worse during the years and leaving me my heath as it is now.
Now, I try to be positive and happy because the other side is too bleak. If you have not, read up on TN. Maybe find the right type of ‘brain’ food to eat. I know during those years of pain, my eating habits were so, so bad because I moved in with my ex BF who wished I cooked all the time. And if I did not, it was fast food, the worse thing for anyone, I suggest DO NOT EAT fast food. Maybe stay towards organics. I believe something in our society life style has a play to this disease. Also try not to get stress out, the pain can escalate. BAck in 2000, there were about a million people with it, now it seem like a lot more. My friend at work got it two years ago after being pregant.
Please try to stay positive in body, mind and spirit and that may help build your immune system and help the myelin in your brain from deteriorating. My ex-BF thinks I was because I got into a car accident when someone rear ended me but I don’t believe it. I think it came from a massage when I had a sport massage; the person pushed his thumbs up the back neck core of my skull too hard. That is when I first felt a slight pain on my right tooth and it WAS NOT a toothache. I don’t know actually if that is why it happened to me.
The worse for me, my BF left and we have a child together. Although both holidays fall on my week, he is complaining about not having him. Having no family, I hate the holidays. I have been invited to Redding for thanksgiving 4-5 hours from where I live and I would have to take a train. I don’t feel like going. I guess a Thanksgiving alone is not so bad, right, everyone. Am I the only one spending TG alone, I wonder? My family are fair weathered dyfunctinal type who do not know how to deal with people with chronic pain so it is best to pretend I don’t exist. I say something about suppot and none of them are talking to me. Oh well.
Quality of life, any kind of pain will affect that. The point is if you have a good support system. I did not, but I am sure you will!
I will pray that it will go away for you.
God Bless you and your family.
p.s. anyone in Martinez, CA with this disease?</div>