It has been a while since I last logged in. I will share some my experience for TN pain.
1, diagnose: I recently walked into a integrative medicine doctor accidentally when I try to find a pain doctor. He mentioned I may have fibromyalgia. I talked to my family doctor she agreed with. I think I saw it somewhere in this website. So I just wonder maybe it is common or at at least for some trigeminal neuralgia patient to have multiple pain sites. Personality-wise I tend to be a little anxious, goal-driven and my mind is always busy. my muscles are always tense.
2, Head tilt: my head slighted tilts to my right side. It started when I was in middle school . I deliberately tilted my head to accommodate seat rotation. One day I slept in the couch with my head tilted too much to my right side. I felt the pain, so I wonder maybe the head tilt position actually aggregated the pain, or even caused pain at late years. Right now I try to put my head upright, not my sick side either, because when I tilted to my left, my right side felt tension.
3, Neck movement: I heard a physical therapist said our neck moves the least every day. Not like our knees joint, hip joint and back, you really move neck a little. So, now every day when I do my every meditation, I’ll just move my neck around, rotate backwards for 15 to 20 minutes, so I can lose up my disc and my muscle attached to it.
4, Aloe Vera gel did a little to me. Cactus gel irritate my skin and did not work.
5, Aspercreme pain relief works better than lidocaine cream. I have used this pain relief for my back and knee pain. One day I thought I gave it a try for my trigeminal nerve pain. I noticed the result the same day! I hope it can completely take my pay away one day.
6, Lamictal hives. I have tried Lamictal recently. I started have hives on days 4. Prior to that , I was taking Benadryl for my cough . the hives lasted few days with Benadryl’s help .Lamictal can cause life threatening skin conditions . I was scared to know that afterwards.
I am in a longest episode of pain, almost a year now. Sometime is better. Some time is worse. All oral medications has failed to work and my TN is not indicated for surgery. I am going to consult an orthodontic to see if aligning a few teeth would help, since my was cause when those teeth were moved incorrectly.
Hope everyone can find the right solution!