I am so lost now! I had a wonderful neurologist that I haVe been seeing since 2008 when my TN started. He has always been there for me, listened to every word, was very sympathetic, and I could always be me and was very comfortable around him. Dr. Marable (my neurologist) passed away on Friday in his office of a heart attack. He had been fighting heart disease for years. I have known him for 20 years as he came to my brothers clinic once a week for many, many years, so he was like part of our family. I am so sad for his family and friends. He was a wonderful man and doctor. He spent so much time with all his patients.
I don’t want this to be about me at all, but I don’t know what to do at this point. How will I every find a doctor that cares about me like he did?? How will I every find a doctor that listened to me like he did? I have read so many post here of so many of you that have had such bad experiences with finding a neurologist. It scares me so bad. It is very hard for me to open up about my condition and feel that comfort. I am not a complainer and suffer in silence so much.
Does anyone know of a good neurologist in Arlington or Ft. Worth, TX that has the knowledge of TN and really listens to us. I am so scared to start over so I would really appreciate any recommendations that you might have. I have had 2 failed MVD’s and 2 cyberknife treatments. I have TN1 & TN2. The left side of my face in totally numb with awful burning and pain is a brief description of me!!!
Again, thank you so much in advance of recommendations that you may have and I hope you all are having a pain free day!!