I’ve read so much about this surgery, and I had told myself it would be my last resort if nothing else worked. However, I woke up this morning and experienced the worst pain I’ve had in my life due to Trigeminal Neuralgia. It’s attacked me multiple times today, and it’s broken my morale. I can’t do this much longer, and I’m at a breaking point. I need to consider MVD more seriously. Knowing most of you can relate to the pain this disease causes, the stress, how easily it can ruin your life… I need some honest opinions and some whole-truth answers. I don’t want anything that’s softened or altered; blatant opinions please.
I’m 16. I’ve dealth with TN for about 2 years. Medications haven’t worked, and there hasn’t been any aid for me regarding this disease so far. I’ve tried 5-6 medications that did absolutely nothing for me. I’ve tried Lidocaine infusions which are just way too time consuming to wait and see if it develops any results. Trying all the medications is going to take too long. Gamma-Knife is not an option for someone of my age. I don’t trust the chances of glycercol injections. This disease has ruined (and trust me when I say ruined) my life. My grades are drastically lower, my social life has declined drastically, and I really can’t eat, drink, sleep, talk, or even keep oral hygeine properly.
I’ve talked to a Neursurgeon who has performed MVD surgery before, and even with people of my age who have had Trigeminal Neuralgia. He told me the risks, etc. I trust this man with the surgery. The only thing I worry about is he said regarding my age, if he opens up my skull and decides there’s not enough room to perform the surgery, he’s not going to risk hurting me. My other concern is that my MRIs have showed up fine, not confirming any sort of problem. But this is definitely Trigeminal Neuralgia, we just haven’t confirmed the cause.
What would you guys do in this situation? I’m leaning towards the surgery, because I’m just miserable. I really don’t think I can do this much longer, let alone allocate the time that it would take to try medication and everything else.