Medications while pregnant

Good afternoon,

For those of you who have gone through pregnancy while having TN or ATN, would you please share what your experience was with medications? ie, were you able to remain on certain medications, what did you do instead of taking opiates, etc?

Thank you!

I want to get pregnant in the future, so I've discussed this with both my pain specialist and my Neurologist.

My facial pain specialist said absolutely no meds while pregnant. He was specifically concerned about autism. He did say that many of his patients have gone into remission while pregnant, but it's not guaranteed.

My Neurologist said some meds are okay -- that he has had tons of epileptic patients that cannot go off their meds and that they've had healthy babies.

Interestingly, my Neuro said that opiates are less harmful than many of the other standard TN meds. The worry with opiates would be that the baby would be born addicted, so women need to taper off them toward their third trimester.

We really want a baby, I just turned 37 so it's not like I have all the time in the world. However, due to the stress and meds, I haven't had a period in 138 days! I'm about to take a course of progesterone to see if that will trigger my cycle. Has anyone else had this problem?

I think my plan is to try and go off the meds, get pregnant, and then take meds if I absolutely have to, and I won't take anything above Category C. The only med I take that is above that is Klonopin, which is Category D.

I'd really like to hear other people's experiences too.

Thanks for your response Crystal, and best wishes to you. Do you know what your pain specialist’s concern about autism was? Is there a specific drug that that is linked to? Also surprising to hear about the opiates…I rely heavily on them so that’s good to know.



crystalv said:

I want to get pregnant in the future, so I've discussed this with both my pain specialist and my Neurologist.

My facial pain specialist said absolutely no meds while pregnant. He was specifically concerned about autism. He did say that many of his patients have gone into remission while pregnant, but it's not guaranteed.

My Neurologist said some meds are okay -- that he has had tons of epileptic patients that cannot go off their meds and that they've had healthy babies.

Interestingly, my Neuro said that opiates are less harmful than many of the other standard TN meds. The worry with opiates would be that the baby would be born addicted, so women need to taper off them toward their third trimester.

We really want a baby, I just turned 37 so it's not like I have all the time in the world. However, due to the stress and meds, I haven't had a period in 138 days! I'm about to take a course of progesterone to see if that will trigger my cycle. Has anyone else had this problem?

I think my plan is to try and go off the meds, get pregnant, and then take meds if I absolutely have to, and I won't take anything above Category C. The only med I take that is above that is Klonopin, which is Category D.

I'd really like to hear other people's experiences too.

He didn't refer to any drug in particular, but I'm on amitriptyline, klonopin, nadalol, and percocet. He has strong opinions on things and has helped more than anyone else, but it's hard for me to believe that I can't take a small amount of meds without bad effects on the child. Everyone my age was probably conceived and carried while their parents were drinking, smoking, and dropping LSD, yet the Autism rate is higher now???

To be honest, I don't know how much I buy into it. While I definitely believe in Autism, I feel it is often over-diagnosed to kids who just have normal behavior problems. I am not trying to lessen the cases of those that do have Autism.

http://www.ncbi.nlm.nih.gov/pubmed/21586715

Above is a link to an article by JAMA (Journal of the American Medical Association), about birth defects from mothers taking meds, whose conclusion was this:

"Conclusion Among live-born infants in Denmark, first-trimester exposure to lamotrigine, oxcarbazepine, topiramate, gabapentin, or levetiracetam compared with no exposure was not associated with an increased risk of major birth defects"

I am pregnant with tn. my dr said that a lot of woman have a reacurence because your face swells and puts pressure on the nerve. He prescribed me Lyrica and anexia for the pain since they are both class c and wont harm my baby. I cant take the anexia becasue they make me sick and thats causes even more pain. The Lyrica bearly takes the edge off the sever pain I am in but I wont stop taking them becasue even the little bit of pain it takes off is better then nothing. This is the worst it has been and there is nothing they can do about it accordingto my dr but I go see a neurolagist on the 26th of this month so maby they will have something to add but so far my pregnancy which is suposed to be an amazing thing has been nothing but a nightmere. I am not trying to discurage anyone from being pregnant with TN becasue no matter how much pain I am in when I have bay Laila it will all be worth it but man it really does suck so far.