Hello everyone, I have posted my story on here before (diagnosed with AO around 2006; finally pain free on imipramine in 2010 after trying anticonvulsants and Lyrica); pain free (with breakthrough pain only about 1 day every month or so) for 6 years. Pain came back a little over 2 years ago and a neurologist increased my imipramine, then tried other tricyclics and then Cymbalta and nothing helped. The neurologist gave up and so I went and saw an orofacial pain specialist down in Coral Springs and he couldn’t find anything to help me either (my pain is "centralized).
My question is, has anyone been able to get a doctor to medically induce a coma to try to help “reset” the pain signals??? I read a few papers on this helping people like me with medication resistant pain. I have pain EVERY day. The only time the pain seems to subside is when I am sleeping. NOTHING helps the pain at all (opiates, clonazepam, NSAIDS, capsaicin, nerve blocks, ketamine (low dose), kratom, CBD, and marijuana did absolutely nothing OR increased the pain). I am desperate for help and have no idea what to do or where to go next.
That movie line “sometimes dead is better” is pretty much summing up my life right now. ANY help would be appreciated. (Please read my full story in my other posts)