I have started a blog, to try and accomplish a number of goals.
1) Retain what sanity I have left while unemployed and going to doctors
2) Spread awareness about TN and ATN
3) Share my results with my fellow fighters here
I am still not sure where I stand on #1, but I have made progress on #2 and I want to start #3. 2 months ago I started a blog called Masking The Pain at maskingthepain.com. For it, I being a type 2 sufferer, paint my face where it hurts, when I get break through pan (almost daily)
. I find it therapeutic, and brings some joy to an other wise joyless, harmful experience. I have begun wearing the pain masks in public. It shows my friends and family when I am having a really bad day (bigger painting.) It also gives me a reason to bring it up and teach strangers about it. Makes my invisible illness visible. It is also something to get up and do in the middle of the night when I can't sleep.
I was hoping anyone here who wants to could hop over to maskingthepain.com and check out my work and tell me what you think. maybe share your stories with me. If you feel like it and if you can touch you face I would love to post other peoples "mask art" or for you type 1's who shudder at the thought of putting a brush to your skin, I was thinking if you took a photo of yourself you could paint, or color that, and then send that to me, again, only if you want to.
If you do want to participate in "masking the pain" you can email me at ■■■■,message me on this site, comment at maskingthepain.com, or if you want to send a paper letter I can send you my address.
Thanks for checking out my work!