Quantcast

Living With Facial Pain

Just Getting Started

#1

Hey Everyone,

I was just diagnosed. I also have Cluster Headaches, so I’m familiar with how helpful sites such as this can be, even life-saving. So here I am :slight_smile:

My jaw/cheek area is not as tender or as swollen as it was yesterday and the number of triggered-attacks has diminished (zero so far today). I was able to eat all meals so far today and drink without issues. But! That’s the kicker, I can still feel that the episode (maybe it’s the TN2?) is somewhat active. My question is:

If I continue to to laugh/smile/talk during an episode that seems to be dying down, do I run the risk of aggravating the area and extending the episode?

I’m still learning the terminology and what not, so I hope what I asked makes sense. I’ll provide more info on my story and background ASAP, I just had this pressing question throw out there.

Thank you and PFW to all!

0 Likes

#2

I have no idea but just thought I would say hi.
I thought the drinking bit might be helpful(just joking)
So I guess my question would be that you mentioned you have two things
Tn2 and cluster headaches.
Anything else?
It is so frustrating -what the heck is TN2?

0 Likes

#3

No I don’t think so, Try Carbamazeine first, it is the most effective.
Si

0 Likes

#4

So it’s…
Clusters
TN1&2
Rheumatoid arthritis
Raynaud’s
Sjogren’s
Tinnitus
Essential tremors

Since my initial post, the episode of TN has passed. It was the first time it remained so sensitive for so long (4-5 days).

I’m 39m and I had gotten similar “zaps” to my face/jaw before, but they were one-and-done, maybe once or twice a year. Always thought “omg, wtf was that?!” but I would simply adjust how I chewed and it would go away.

This last time, I stayed susceptible to attacks for several days.

Does this sound like the typical progression of TN? Trying to get an idea of what to expect and when, progression-wise, if at all possible.

0 Likes

#5

Man I hate it for you (us)! Sometimes, some things are sure fire triggers. Once I get wore down I do my best to avoid every one possible. The biggest culprit in my experience is stress. If I’m stressed out and feeling ‘Joker Face’ - a sensation like the tissue under my skin below my cheekbone is drawing itself up, I can’t help but get fearful. So when the sky starts to turn orange as dusk falls, I get a little panicked wondering if the pain is going to ramp up into an episode. So that adds more stress, it’s a vicious cycle you can’t overcome with rational thought. Humans always listen to their emotions before logic and reason.

Work at finding self soothing options and remembering to breathe. Pain often causes us to take short gasps of air and hold our breath but there is impirical proof that greater volumes of air increase pain tolerance. One of the things I do when it is really bad is to turn in circles while I hold my cheek and huff lavender oil. I’m sure it’s quite a sight.

Other times, if I catch it before it gets too rock and roll, I’ve found serious hard labor keeps it at bay. Sometimes I have to wear a knitted muffler around half of my face while I work - even in the Summer, in Florida but clearing land, splitting wood, hours on the chain saw, building fence line, etc keeps it at bay and when I’m just too tired to take another step the come down off the natural endophins lets me get at least a little sleep.

Good luck. Let us know how you cope.

0 Likes