Thank you so much for responding to my post. I thank you all for the condolences.
Well As a nice update the sever as hell migraines have passed, so no more ER trips. Unfortunatly as always occipital and facial pain are a little harder to control. This is face pain flare up season usually so I know the pattern.
As far as the emotional pain making the facial pain worse, I think it makes the migraines worse. Well cause crying hurts and I don’t really cry, because of my mantra. Lately I have been sensitive and the pain makes me cry and than makes it worse. Maybe there is a link. I just don’t understand why it would start in May end in July though. I have felt worse recently, and have sought counseling.
As far as work and pushing myself. I appreciate the rooting but it is hard to be in a cashier position and talk to people all day without having horrible jaw and temple ache which than starts a sharp ache in my forehead and my face starts twitching all over. I have also been fired from my last three jobs because I cannot keep a schedule. Again I have doctors appointment at least once a week. The pain is ridiculous so having brain fog is a norm and jobs don’t like for people to take longer. I just want a job that is flexible, not a gig a job. Also cause of recent hearing loss I fall so I have to wait for that. After meds I fall asleep I don’t want to fall asleep but I do. I feel as if I am defending myself here. The way I do with most people. I don’t know if you see the list of medicaitons. I am happy for those who can manage all of those meds, injections, and procedures, and have a job. I salute you, but I am not that wonderful. I thought you guys would understand this.
After injections which are pretty frequent, I need at least 4 days to recover. I have taken all kinds of meds Nucynta, lyrica, amtryptaline, all kinds of narcotics at the beginning. I mean if I didn’t become an addict in 2008-2009 it isn’t happening.
Pain just the facial is turned on by air conditioner, water, rain (yes rain), makeup, sirens and the lights. I live in Manhattan so its loud and bright. A trip to times square is murder. Movies are really difficult. It also triggers nausea, like get a bag ready or take meds. That also triggers more pain. Jesus bending over to tie my shoes or just stretch is a mess.
I blend a lot of my food or have soft foods. I don’t know about you guys but I hate blended dinner. If it were sweet it would be awesome but its just dinner.
I have been to the dental school for help. All I got from them was 20 trigger point injections every time. I felt like an attraction with all the students staring at me. I got on a good regiment of medication. Problems with them was getting in contact was incredibly difficult, they do not have an on call team or anything it was just a clinic and that was the only way to see the oral-facial pain specialist.
I did lab work in my last job. I dropped so much glassware, I don’t know how. I fell with a box of test tubes with a jolt of pain. I fell asleep three times and that lab director understood but I was no good in this condition. He asked me to come back when I felt better. I wish.
The GPN was recently diagnosed but I have has symptoms for two years until they figured it out. I figured it out first but they said I was in the wrong age group and I was the wrong gender. I am getting the GPN shots every two months now and have a hoarse voice that comes and goes.
I don’t wish for anyone to feel this pain, I have felt it since I was in my teens. Earlier even but everyone said it was growth pains I would feel cause of the cleft lip and palate. I also have implant in my face I got as after hs graduation under by nose above my front teeth because the bone wasn’t growing and so my face kinda sloped off to he left.
I am not trying to be hard. I am sorry if I sound defensive. I feel like I am defending myself. I have not been suicidal just feel a kinda sad that this is my life. It sucks to have gotten so super ready for adulthood and fail. All because no one knew the signs or maybe I didn’t express myself well enough. I have sucked up so much pain and went forward regardless. Until I couldn’t anymore.
I also know that non of us can really compare just really sympathize. We don’t all have the same 10. I know that my 10 is when I can’t remember. I can’t communicate, throw up, get super anxious start sweating, than my dad knows what to do. I sleep a lot of not enough. I went through a period of pain and didn’t sleep for 24 hours. This was when I lived alone. I also slept through a fire alarm, thank goodness by than I had the good sense to get a room mate. Her BF was staying over that night and they both were able to wake me up and help me out of bed. I don’t remember the rest but apparently we made it downstairs and they sat me down and I just kept sleeping. I woke up when I was walking up the stairs.
Sorry guys again. I didn’t mean to get winded and all over the place. I have to take meds right now and things are starting to look blurry.