Is there hope for someone with Anesthesia Dolorosa?

It seems that my highly respected surgeon for MVD has decided that I now have the above. It seems to be getting worse as the weeks to by. Has anyone had success with any kind of treatment for this rare disease? I'm getting pretty desperate these days. I'm open for suggestions. Please offer some help. Thanks.

Hi, I found this link that offers treatment options at the bottom of the page
http://www.fpa-support.org/2011/01/anesthesia-dolorosa/
Also if you type in anesthesia dolorosa in the search box ( above right) you’ll find posts of others that suffer with this and possible treatments they’ve tried.
Thinking of you, Mimi