Hello.. Been recovering from a 2nd shoulder surgery in 11 months.. so I've not been able to type much.
I have been taking 3 tegretol a day at night for about 2 months since diagnosed. I had a episode 2 weeks ago which was quite bad. So I went and found a new Neurologist that knows quite a bit about TN.. He confirmed after a lengthy examination and questions that I do have both glossopharyngeal and trigmenial neuralgia. He is sending me for a MRI and talking about a injection after changing to 2 100 in the morning and 2 at night. He was quite puzzled why a doctor told me to take all 3 at one time.
I do hope changing the dosage and timing will help.. having that episode 2 weeks ago.. I don't want to have again.