I am new and going soon abroad for proper diagnosys, because here they dont know much I thing! I have this terrible burn in my mouth all over, also teeth pain , face acke, ears acke tempel acke, ear acke....so many things! It started very mild 5 years go...just slight burn and change of taste! So the last year is realy bad! I am a member of FB group called Burning mouth syndrome! But rely I am not sure I have these...maybe a mixture of may things! I am also thinking of ATN or TN...dont rely know what to thing! I was recently diagnosed with HSV1 in my blood active...with no visual presence! Dr, Maria Nagel, very well known neurovirulogyst...have proove, that viruses can mess nerves, specialy TN! So I am going for further tests and if some more tests exclude some autoimune deases and my HSV1 is again positive ( I hope it is )...I will be put on antvirals for a 3 months high dosage and then for a year...low dosage! This should keep the virus under control,,,and time to heal effected, irritated nerves! Ofcourse I have to do a lot of scanning to! Recently on our group somebody come up with a cream called Galllixa.com! It is for pain also postherpethyc neuralgia! Many had a good sucsess with it by reducing their pain on face! I am not selling or advertising...but you have a look! mr.Bernstein is a Harvard scientyst and very kind! Will answer all you wish to know!
Also had to add, that I had 4 months ago surgery of Eagle syndrome on right side...very painful and sore still...life is not rely kind to me for the past years....all the time pain...nothing helps, Lyrica, Notryptyline-alllergy, tegretol-Alergy...suffering rely great! And what is the sadest is, that my children are abroad...and ALL my relatives are saying I am crazy...that is all in my head! Imagine this-how can people be so bad? Friends hardly have any...due to my pain.... they dont understand!
I'm so sorry for your pain. I personally don't have it, but my mother does, and its a horrible pain to go through, and to watch. I'm going online to look at the pain cream you are talking about. Does it relieve your pain at all?
VALENTINA said:
Also had to add, that I had 4 months ago surgery of Eagle syndrome on right side...very painful and sore still...life is not rely kind to me for the past years....all the time pain...nothing helps, Lyrica, Notryptyline-alllergy, tegretol-Alergy...suffering rely great! And what is the sadest is, that my children are abroad...and ALL my relatives are saying I am crazy...that is all in my head! Imagine this-how can people be so bad? Friends hardly have any...due to my pain.... they dont understand!
A bit is a reliefe...for some more for some less, for some not :( Thank you for your kindnes xx Loni said:
I'm so sorry for your pain. I personally don't have it, but my mother does, and its a horrible pain to go through, and to watch. I'm going online to look at the pain cream you are talking about. Does it relieve your pain at all?
VALENTINA said:
Also had to add, that I had 4 months ago surgery of Eagle syndrome on right side...very painful and sore still...life is not rely kind to me for the past years....all the time pain...nothing helps, Lyrica, Notryptyline-alllergy, tegretol-Alergy...suffering rely great! And what is the sadest is, that my children are abroad...and ALL my relatives are saying I am crazy...that is all in my head! Imagine this-how can people be so bad? Friends hardly have any...due to my pain.... they dont understand!
I have used the Gallixa cream and it did nothing for my pain, i used it for serveral days. I have seen post where members have had good success. I have been told if you contact the maker they might send a sample. Good luck
Hi Scott, was told you have to use for more than several days and you can aply more than 6 times per day...infact more you use, less pain you have...that si what people are saying in our group of BMS! Yes, I know, because I am using it and ordered the cream...e when I use strictly, my pain is less.....Thank you Scott x
Scott said:
Hi Valentina,
I have used the Gallixa cream and it did nothing for my pain, i used it for serveral days. I have seen post where members have had good success. I have been told if you contact the maker they might send a sample. Good luck