I'm only newly joined so I know it's a bit early for a venty/ranty post but...I'm fed up :(
My TN has decided to be an ass. I can't really think of better ways to explain TN's behaviour. Sometimes it's ok, sometimes it's like a delinquint toddler, sometimes it's a downright ass.
In November I will have had TN for 2 years and in that time, even though I have type 1, I've never had a true remission. I've had points where I could lower the dose of medication, but never once come off it completely. Getting a pop or twinge every other day is my 'normal' and doesn't bother me as much anymore, it's the flares that eat away at my pain threshold and tolerance...
I'm in a flare. Or rather, I'm probably this bad all the time but I don't know it because my medication works. It's decided not to work anymore. I currently take Gabapentin, on the maximum dose my GP will allow (3200mg daily) and the break through pain has been getting progressively worse each day, not better. Today I had clusters, so went to the GP...He's told me to stay on the Gabapentin, at 3200mg, and has prescribed Efexor-XR...An antidepressant.
Last year I had a few months success with Norpress, also an antidepressant but then it failed. I've been on Gabapentin with excellent results for 16 months.
Has anyone else had antidepressants prescribed? Which ones, and did they work? Does anyone know why they keep offering me antidepressants for TN pain?
I'm not depressed, although all things considered, I should be. >.<
I've been told to take 75mg the first week, 150mg the second, then 225mg from then on. I had my first pill today and within a few hours I already had dry mouth with a horrible taste, nausea and uh...Well, it's not polite to discuss what happens in the toilet on a public forum. *blush* If this is what I can look forward to from Efexor......
The only other thing he offered was a Tramadol injection - Tramadol not being as strong as Morphine, and Morphine doesn't touch the pain - And didn't know if it would work, would have to do it to find out, and even if it DID he couldn't say for how long, a few hours, maye a few days. Well what's the point of that?
I was supposed to have an MVD last year. They did, but had to abort the procedure as my brain herniated. I was in HDU for 56 hours, hospital for 9 days all up. I have a big scar, and a piece of my skull missing for nothing. I've had one MRI since then, and the swelling hadn't gone down. I saw my neurosurgeon on Friday, with a full page of all the things that have been happening to me since the surgery - Resulting in him saying he wasn't willing to perform any more procedures on me due to the risk. Ok, I do (grudgingly) accept that. But that he 'didn't know' why all these symptoms have appeared. (It's a long list :( ) He's referring me back to the facial pain specialist (who is nice, but couldn't offer any help except to refer me to the neurosurgeon so I feel like that game 'piggy in the middle') and a neurologist - Appointments which could take weeks or months to eventuate.
He spent some time examining (and by examining I mean pressing and prodding my still tender surgery site, despite me wincing and explaining it hurts there each time) to make sure it was alright...And then 5am Saturday morning I woke up with my nose bleeding. I haven't had a bleeding nose in over 10 years so I don't know if this is coincidence or not?
I'm lucky enough that both my GP's straight away clicked to what was wrong with me when my TN started, and have handled me the best they can in regards to medications, side effects etc since then...But have said I'm running out of things to try. This will be my 5th medication in just under 2 years. With any kind of surgery no longer an option, and medication options running out....I don't know what I'm supposed to do - Right now AND in the future as I'm only 29, and TN supposedly gets worse over time. It's horrific now...:(
Sorry for ranting/venting...I'm just so fed up feeling right now :(