Does anyone else have this weird problem?

Hi gutys, so ive noticed during my last two attacks that everytime it kicks off and the pain starts a vein or artery or something on the roof of my mouth (right side) swells up really bad like someone has filled it to burting point with blood or something??? the worse the pain is the more it swells up?? and at the moment a lot of my pain is on the right side, roof of my mouth (as well as the typical shooting pains on the top and bottom gums). ALso, if i start to cry and blow my nose during an attack, blood comes out!???

Just wondered if this vein swells up dramatically during anyone elses attacks???

And i cant even put pressure on my back tooth cus that causes pain thats bad enough to make me scream out in pain.

I also think my neuralgia has gone from Typical to Atipical, when i get an attack now the pain never ever stops. its constant untill such time the attack fades. Im worried about it turning atipical as my surgeon said that the operation pretty much wont work!

Idon't think I've ever heard of blood vessels in the mouth swelling visibly in response to a TN attack -- though I've certainly heard of one side of the palette getting red and becoming hyper-sensitive to touch. If you are actually bleeding from the mouth after blowing your nose, then I'd advise you to schedule an appointment with an Ear Nose and Throat specialist to find out why.

Regards, Red

Thank you for your reply :slight_smile: im going to mention it to my surgeon when i see him. first thing on my lost is to get whats left of a crumbled tooth rempoved. That is where the pain starts and for some reason the gum has swollen into a very large lump that half wraps around the tooth now. this only occured today during my attack. :S

Mica-

1. I have never experienced blood coming out of my nose during an attack. I have however though, had the pain get worse when I blow my nose and basically breathe. I would talk to your neurologist about all of this. If he ignores it, get a second brain involved!

2. What surgery did your Dr. tell you, that would not work to treat atypical pain?

OMG! That happened to me a while ago.I've only had it once.

At this monent in time I'm getting a metal taste in my mouth and I do not know if it is linked but I keep complaining that things don't smell very nice!!

Metal taste and bad smell are sometimes side effects of medications used to treat face pain. You might do some research at http://www.rxlist.com

Regards,

Red

Hello,

I don't have the pain in the roof of my mouth but I DO get it in the back left of my throat and left neck artery....

I don't know about the blowing blood issue in regards to TN but my old allergist said that sometimes happens with severe sinus irritation, though I am not sure if that's what you have. I hope you find some answers!

Mica,

Its sounds like you have an infection in your tooth, I would have a dentist look at it. I have learn the hard way is that if you don't take care of the healthy of your teeth, that I believe a TN 1 can turn into a TN 2. Please do something now. You can get help at a dental school if you don't have dental insurance and make payments for your dental care. Lets us know how it turns out.

Kim


Mica said:

Thank you for your reply :) im going to mention it to my surgeon when i see him. first thing on my lost is to get whats left of a crumbled tooth rempoved. That is where the pain starts and for some reason the gum has swollen into a very large lump that half wraps around the tooth now. this only occured today during my attack. :S

i have inflamnation in this area and it can be blody in the morning with soreness. I always assumed the painful sore feeling was pressure from the scar tissue. I can also get minor nose bleeds.I wonder if a mouth rinse or nose spray would help. Have you tried an ENT?? Ive had cortisone nose spays. I just say Reds advice and we seem to agree on this. Any are that is chronically irritated can be sore and tender but not heavy bleeding.



elaine48 said:

i have inflamnation in this area and it can be blody in the morning with soreness. I always assumed the painful sore feeling was pressure from the scar tissue. I can also get minor nose bleeds.I wonder if a mouth rinse or nose spray would help. Have you tried an ENT?? Ive had cortisone nose spays. I just say Reds advice and we seem to agree on this. Any are that is chronically irritated can be sore and tender but not heavy bleeding.

I actually had the bad taste in my mouth prior to medication or diagnosis. It seemed to be an afterthought to the doctors. But pressure behind my ear to almost blinding pain. Then the awful taste in my mouth. Now being treated with neurontin at 900mg a day. That effect hasn’t changed during an attack either.




Richard A. “Red” Lawhern said:

Metal taste and bad smell are sometimes side effects of medications used to treat face pain. You might do some research at http://www.rxlist.com

Regards,

Red

I have my emergency appointment with a nuerosurgeon tomorrow to discuss my recent attacks and to further discuss the surgery. I will let everyone know what happens and what is said. Im going to get what is left of this tooth removed when i get paid as sometimes i wonder if just pulling it out will stop alot of my attacks. I think this because the pain ALWAYS starts on the gum directly above it and I can usually tell when im going to have an attack becuase when i put pressure on that tooth with my bottom ones (clenching my jaw i guess you could call it) it hurts and the worse an attack is the worse the pain in the tooth.

what do you guys think?

And thanks everyone for the replies, i dont always get back to you all straigh away but it helps so much. Im finding myself living in fear and depression and looking at people older than me and wondering if i will ever get to that age and if i have anything in store for my future other than the worst pain known to man kind. lol just made myself cry again. Silly...

Two thoughts: (a) it might be that you have a trigger zone in the vicinity of your broken tooth. If that's what it is, then pulling the tooth might be dentally necessary, but you might find that it doesn't completely suppress the pain. And (b) if you are really "down" and feeling teary and volatile, fearful of the future etc, then you might be clinically depressed. Are you doing anything in either meds or Rational Cognitive Therapy to help yourself with that?

Regards,

Red

Hiya, no im not, i just try to carry on, work and laugh with my husband whenever i can. I barely have the time to see my neurologist cus my work hours are so unflexible, plus, i kninda feel like it would be admitting defeat and just dont wanna accept the fact that the neuralgia might be giving me some kind of depression, cus its done enough damage already. Stubborn i know but i feel like, no one can change whats in store for my future anyways....

ARRRGGG confusing, i know it would probably help to see someone but i just dont wanna!! xxx

http://www.liv.ac.uk/dental/

Dental school in liverpool, UK

Mica, I must sigh over your remark about being stubborn. Your attitude is always yours to control. But I would suggest with every intention of courtesy and respect, that digging in and refusing to consult a pro for depression can actually worsen your pain. I'm not suggesting counseling, though some folks do better with supportive therapy. I had more in mind, an appropriate use of anti-depressant drugs, some of which have a direct cross-action on pain itself.

However, this one is obviously your call. I simply think it is an unwise call, thus far. No scolding intended here...

Go in Peace and Power

I hear what your saying completely and im going to stop being a fool and listen to your advice. And thank you so much for taking the time to relpy to my discussions. Your help, and everyone elses has been incredibly helpfull and im going to talk to my neuro surgeon tomorrow about absolutley everything including anti-depressants and therapy. Ive been considering alternate medications to such as acupunture and hynotherapy, but first of all im going to see what the doctors can do for me!

Thank you again for your advice and sorry for seeming like such a fool!

:)

Richard A. "Red" Lawhern said:

Mica, I must sigh over your remark about being stubborn. Your attitude is always yours to control. But I would suggest with every intention of courtesy and respect, that digging in and refusing to consult a pro for depression can actually worsen your pain. I'm not suggesting counseling, though some folks do better with supportive therapy. I had more in mind, an appropriate use of anti-depressant drugs, some of which have a direct cross-action on pain itself.

However, this one is obviously your call. I simply think it is an unwise call, thus far. No scolding intended here...

Go in Peace and Power

Oh wow, thank you very much! I will get in touch with them tomorrow!



zentn said:

http://www.liv.ac.uk/dental/

Dental school in liverpool, UK

I would never wish to call anybody a "fool" Mica... Too many people over the course of a long life have called me worse...

{:-)

The term "curmudgeon" comes to mind.

Be well, do good work, and never try to out-stubborn a cat (ref: Robert Heinlein)

Red

hahaha thats a good qoute!!!