Dear brothers and sisters,
I hope your experience maybe can help to define my diagnosis and find right treatment.
As I live in small Post Soviet country (Latvia,population-only 2 millions), neurologists here are not very familiar with Atypical TN (I start realize that after coming to LwTN!) also we don't have specialists, who specializes on facial pain.
My pain started 5 years ago and was located at the one side of face in cheek area (smarting, stabbing, pressure like, lvl 2-7/10, almost 24/7) As I was just recovered from sinusitis (got them often, had 2 small nose partition correction surgeries before 2 and 4 years), went to ENT, x-rays showed nothing, neurologist wrote Nimesulide, Diclac - nothing helped. Then I went to dentist who find pulpitis in my upper mollar (same side where pain was) and did that root canal. Also I used medication course consistining of Coxtral, Solpadeine, Mydocalm, antidepressants. I was pain free for 6 months!
And then...it started again :( in same location&character of pain. I tried Carbamazepine, Gabapentin, Lyrica - nothing helped. I was so depressed and couldn't stand out it anymore so I went to neurosurgeon, who was certain that reason is my mollar. X-rays showed there was a cyst!!! I had that mollar extracted, but unfortunately it was connected with maxillary sinus, which suppurated in 3 days after extraction. I had to undergo 2 sinus-oral surgeries under full anaesthesia to move that crap out. Also camed out that reason why there formed cyst was root canal sealant, which was in jawbone and nerves :s !!!
To my sorrow pain didn't disappear. Even worse - 6 months after surgery I start to feel pain in another side of face! Same character&location - cheek, upper jaw&teeth, nose, temple. Teeth&sinus healthy there.Pain is not equal at both sides at same time. Have tried Anafranil, Baclofen, Mydocalm, Cymbalta, Lyrica - none of them giving remarkable relief. I have been to lot of doctors and got lot of diagnosis: Somatoform disorder (hahaha),Fibromyalgia, Somatization, Atypical TN...
I red Face pain info here and I had thought that maybe I have Trigeminal Neuropathic Pain?
I want thank everyone in advance who will answer me, especially thanks to this miracle web patrons - Richard A.Lawhern and Stef!
God bless You!