I suffered from TN of upper jaw of right side for about 10 years till I got my MVD surgery done in 2013.
At that time I wrote two detailed posts on why I chose MVD and my experience with and after the MVD.
Sharing links to the posts here as it might be useful to others:
I have had a MVD surgery 11 days back and I wanted to share my experience- why did I go for the surgery, why did I not choose any other less invasive surgeries like radio surgery (Gamma Knife) etc.. A brief history of my TN pain I am now 43 years old and was diagnosed with TN in 2003 i.e. about 10 years back. I have been on carbamazepine (Tegretol CR) all these years. The dosage was adjusted according to the level of pain. Max I went upto is 800mg and lowest was 200mg of Tegretol CR. Why did…
Thank you for your comment and helping me find this post again.
I am yet pain free ie eight years since my surgery in 2013. I have been fortunate about it.
The closest I have come to getting pain post surgery is when for some reason I opened my mouth too wide (while cleaning tooth cavities after a meal!) I felt some sort of very mild pain. But after I stopped opening my mouth too wide the pain went off.
I have been pain free for 8 + years. It was my 2 Nd surgery & feel totally blessed that I found Dr Sanan for this surgery & lucky he is in Tucson Az where I live. Ring pain free is well worth the nausea I experienced post surgery & the recovery time.
That is nice to know. I have also completed 8years - so we seem to have got operated at around same time.
I’ve been pain free for 8-1/2 years since MVD for GPN. The pain was horrible, off and on for 6 years till the surgery.
After surgery the pain was completely gone, but I had severe double vision for a day, my balance was off for weeks, and my sense of taste went away and took months to come back.
I’d do it again: I was at the end of my rope and now I have my life back.
Nice to know you are pain free.