Thanks for the further info on your condition. No wonder you are confused! Well, like it says on the front of the page, we're not docs. But, in my humble opinion, it would sound as if you have both Trigeminal Neuralgia (Type I) and Atypical Trigeminal Neuralgia (Type 2) symptoms going on. You may have already figured this much out, and that is why you feel confused. I'm sorry for what you are going through.
Even though the shocking with periods of remission are gone for right now, they may or may not come back at any time. With so much on your plate, I hope this STAYS at bay for you! Type I Trigeminal Neuralgia symptoms, from what I have read, respond much better to MVD than Type II, which I read has something along the lines of a 30% success rate of being helped by MVD. (Anyone can feel free to jump in here and correct me if they know that my stats are off).
Since being diagnosed in 2009, I have spent a portion of almost every day researching this monster of a disorder. In the process, I have, of course heard of case histories of success stories, that is total remission of symptoms from Type I symptoms, and on the flip side, I've heard of cases where patients post MVD are experiencing worsened or new burning and aching sensations, such as you are experiencing.
The decision to have MVD so personal. I know there must be a lot of soul searching involved, and I'm sure you are feeling a anxiety. I would talk to some people on the site who have undergone MVD, if I were you.
I would love a solution, such as MVD, rather than maintenance to my pain, which is chronic and, like you, typically hovers around a Level 6, but can rise to around 9 or 10 when unmedicated. I occasionally have the twinges of electricity which I can feel as well as hear and hope that this is not telling me Type I symptoms are on the way for me. These have only begun recently.
My pain began in '03 shortly after the birth of my second daughter. Until recently, I have only been experiencing Type II, ATN symptoms. Because my symptoms are that of ATN, my Neuro did not refer me to a Neurosurgeon for MVD, or any other type of corrective procedure, because I suppose, as Gloria has told me before, it may not help and may make things worse, according to her Neuro, who is well respected within his field. Instead, my Neuro referred me to a "Head and Facial Pain Specialist". I WAS SO FRUSTRATED WITH THIS NEWS! I JUST WANTED TO BE CURED! My Dad was soooo disappointed that I was not referred for surgical intervention.
However, your Neuro has seen the culprit, knows what he is dealing with and has strongly recommended MVD. I am glad that you have the option, if you choose. I am hoping one of our members who has undergone MVD, or even multiple MVDs' would reply to this post, so that you could get an opinion from someone who has come through on the other side of what your doc "strongly recommends".
Gloria's warning is, don't let a doctor push you into anything! She is wise. You have us here for support in whatever decision you make.
To answer your question, from what you have told us, you are experiencing symptoms of Type II or ATN characteristic presently. Feel free to join our ATN group, just click under the "MORE" tab, click on groups and look for us there, or simply go to my page and see it under my listings of groups. Click on the famous painting "The Scream", and join us in discussion, or begin a thread of your own, for further support with people who understand what you are going on with your current symptoms. I am sure our members would like to know how whatever treatment you choose works for you! We are all hungry for more information about this rare stuff that affects or controls our lives to varying degrees. Your input is greatly appreciated too!
I have some information I would like from you, please. What diagnostic was performed allowed your Neuro to see the offending vessel(s) without an invasive procedure? I have had MRIs' of both my brain and TMJ joints to rule out M.S. and T.M.J. Is there a test I should be having, to see what may be irritating both sides of my TN nerve? Please get back with me about this, either by e-mail, or in reply.
Being a parent with TN or ATN is EXTREMELY challenging. I know. I have two girls who keep me on my toes, even when my face is screaming "oh stop the world and let me off for awhile". There is also a group for us Moms too.
Hope to hear back from you soon.