Calling all with dentures....Do I dare, now while in remission? Do I win either way?

General General TN & GPN (Old Site)
#1

Dentists and oral surgeons always say to save your teeth, especially the bottom teeth

Well, I’ve got a feeling that if I woke up with a mouth FULL of a
pretty smile and no more everrrrr pulling or rooting or drilling teeth,
might be the way to go…

OR Looking at three root canals, with crowns just for starters…

I’ve always had bad teeth, some missing in the back, other teeth are held together with generations of fillings on top of each other…

Starting to cover my mouth…when I talk.

So I feel my choice is that my remission is going to go bye bye, either with one bigggg appointment… Or TN will come back with just one pulled, or rooted one day.

What would you do, what have you done?

Also , don’t want to mess with partials. It’s all or none!

I even have one tooth that is an implant in front…that ten years later…is not looking great.

It seems I could take better care of my gums going forward without all these old teeth attached! Is that possible?

Really needing to make a decision soon… But professionals only see it one way…but I’m soooooo terrified I lose my remission either way.

Anguish over deciding!

THANKS

#2

PS even old crowns are looking old and sad,

have had many crowns, fillings and root canals.

Probably two thirds are not even real teeth now.

#3

I STILL HAVE NERVE PAIN ONLY DEEPER AFTER CROWN AND ROOT CANAL! AND WHEN I PUSH ON TOOTH IT STILL HURTS. SO UNLESS NERVE IS DEAD TO BRAIN DOES IT WORK??? THEY HAVE SEARCHED AND XRAYED AND NO REASON FOR THIS TOOTH TO FEEL ANYTHING.

#4

I have partials, did not go to the dentist for years even though teeth from my upper partial was broken. Earlier this year I went into remission found a Dr that truly understood my problems and help me to get my cleaning and new dentures with minimum evasive work in a very short time knowing that the pain could come back anytime. A few weeks after I completed the procedure the pain came back , I often wonder how wise it was to even bother with my mouth I know how I felt wanting to cover my mouth because I was not able to take care of my teeth. One thing I know I am the one feeling the pain it is scarcely

#5

Tough decision! I've wondered the same but how do you find a dental surgeon who will do it?

Before I had my last one pulled I asked a dentist and she said no way, they like to "preserve" teeth now or is it the money they'll make fixing teeth?

Would having them done all at once tug more on the TN nerves?

I'd be interested in more info for sure.

Take care,

Cheryl

#6

Okay, I do not have dentures..yet.. however, My experience with dental proffesionals after suffering with TN for seven years, having had numerous root canals needlessly, and paid ridiculous amounts of money to be told i am only mentally unstable during my battle with TN, has taught me that dental professionals are not only oblivioius to TN but some i think exploit the problem to make money doing un-nescessary procedures. if your issue is TN, then it is NOT dental! Do not let them convince you to waste your money on fix it as such. I suffered unbelievably because of it, even succeeding to root canals without anaesthetic in their ignorance of our actual condition. It is medically proven to those who are intelligently involved that TN has NOTHING to do with the teeth even though we experience it in that area. Research the facts of this disorder and you will find that you can actually inform your dentist. The Trigeminal nerve disorder presents itself far before the dental area, and is expressed there only because of the nature of nerves and sensation. I was put through the humiliation of being made to feel mentally unstable when dealing with dental and periodontal specialists for a few years before my actual diagnosis and cure for trigeminal neuralgia. After finally getting someone to hear me, I was given an MSD and have not had an ounce of pain or problem since I woke up from MVD surgery> To this day, I have mistrust for what the dental proffesion presents. They are aware of this condition, yet exploit it to gain as much $ as possible in performing un-necessary procedures.

#7

Hi KC -

Wish I could give you an answer, but I can't. All I know is that I have most of my TN pain where there is NO TOOTH. After multiple fillings, root canals, etc., I finally got a diagnosis of TN. Then just to be sure it wasn't the tooth, I had it pulled before I had my first MVD in 1998. When the pain came back 9 years later....there was the pain again in the very same spot of the missing tooth. Repeat MVD and no pain for 9 months...then WHAM...the same dang pain where there is no tooth. I dread going in for check ups and cleanings because it always causes a flare-up. Are you in remission after MVD? How long have you been in remission? I think I would enjoy being pain-free for a while.....unless it is a matter of needing fillings/repairs and it's not just aesthetics.

#8

Guess what! Trigeminal neuralgia , although felt in your teeth, has absolutely nothing to do with your teeth! I want you to know that I too, because originally i felt it in my teeth, experienced so much pain and disbelief from professionals that it had a very adverse affect on my life. i began to feel that i was insane becasue every professional told me the pain must be in my mind. After a neurosurgeon took me seriously, and I had an MVD, I woke up with zero pain, over ayear ago and my life has been able to grow and proceed because some astute doctor took a chance. You must make thwem be aware... do not lose teeth for no reason, dont let them feel you are psychologically emoting. It is real.. and you need help/

#9

Honestly...we are fooled by our sensations that this is a dental condition... IT IS NOT! Believe me, i suffered so many un-necessary dental procedures without anaesthetic, to attempt to fix my issues. I am shocked that these professionals were not aware of TN. The only cure is to deal with the nerve issue that exists behind your ear, where the trigeminal nerve crosses your artery. It masy exhibit itself in painful seemingly dental symptoms, but they are completely nerve related./ Do not lose your teeth due to a misconception by your dental professional.

#10

Seriously, when you have nerve pain in your teeth, after the nerve has been removed as I have... they will try to make you feel you are crazy, but you are not! Trigeminal neuralgia presents itself in your teeth in many instances, asnd because dental professionals are unaware of it, they will prescribe un-needed surgical procedures. Do not be disheartened, what you need is to see a neurologist, only then will you recieve the respect and understanding we need. Dont give up hope.

julie said:

I STILL HAVE NERVE PAIN ONLY DEEPER AFTER CROWN AND ROOT CANAL! AND WHEN I PUSH ON TOOTH IT STILL HURTS. SO UNLESS NERVE IS DEAD TO BRAIN DOES IT WORK??? THEY HAVE SEARCHED AND XRAYED AND NO REASON FOR THIS TOOTH TO FEEL ANYTHING.

#11



Nikki Anderson said:

Seriously, when you have nerve pain in your teeth, after the nerve has been removed as I have... they will try to make you feel you are crazy, but you are not! Trigeminal neuralgia presents itself in your teeth in many instances, asnd because dental professionals are unaware of it, they will prescribe un-needed surgical procedures. Do not be disheartened, what you need is to see a neurologist, only then will you recieve the respect and understanding we need. Dont give up hope.

julie said:

I STILL HAVE NERVE PAIN ONLY DEEPER AFTER CROWN AND ROOT CANAL! AND WHEN I PUSH ON TOOTH IT STILL HURTS. SO UNLESS NERVE IS DEAD TO BRAIN DOES IT WORK??? THEY HAVE SEARCHED AND XRAYED AND NO REASON FOR THIS TOOTH TO FEEL ANYTHING.

#12

I understand completely! I had three root canls on the same tooth and they told me I could not possiby still feel pain. The truth is they are not aware of TN and cannot diagnose it properly. Dental Professionalls are not, although should be, properly trained abotu TN. I broke down in tears on my third route canal on the same tooth being told that it is all in my mind. We need to pave the way of education for dental professionals. Do not feel alone, it took me years to get taken seriously. You need to see a neurologist... it is not dental! After being taken seriously finally and seeing a neurologist it was proven i had TN. I had an MVD and have had zero pain in almost two years since. I am gratefull that someone finally listened.Unfortunately, dental proffessionals are not aware of TN, sadlt though it originally presents as dental pain. NEVER doubt yourself.. never give up.

Nikki Anderson said:



Nikki Anderson said:

Seriously, when you have nerve pain in your teeth, after the nerve has been removed as I have... they will try to make you feel you are crazy, but you are not! Trigeminal neuralgia presents itself in your teeth in many instances, asnd because dental professionals are unaware of it, they will prescribe un-needed surgical procedures. Do not be disheartened, what you need is to see a neurologist, only then will you recieve the respect and understanding we need. Dont give up hope.

julie said:

I STILL HAVE NERVE PAIN ONLY DEEPER AFTER CROWN AND ROOT CANAL! AND WHEN I PUSH ON TOOTH IT STILL HURTS. SO UNLESS NERVE IS DEAD TO BRAIN DOES IT WORK??? THEY HAVE SEARCHED AND XRAYED AND NO REASON FOR THIS TOOTH TO FEEL ANYTHING.

#13



Nikki Anderson said:

I understand completely! I had three root canls on the same tooth and they told me I could not possiby still feel pain. The truth is they are not aware of TN and cannot diagnose it properly. Dental Professionalls are not, although should be, properly trained abotu TN. I broke down in tears on my third route canal on the same tooth being told that it is all in my mind. We need to pave the way of education for dental professionals. Do not feel alone, it took me years to get taken seriously. You need to see a neurologist... it is not dental! After being taken seriously finally and seeing a neurologist it was proven i had TN. I had an MVD and have had zero pain in almost two years since. I am gratefull that someone finally listened.Unfortunately, dental proffessionals are not aware of TN, sadlt though it originally presents as dental pain. NEVER doubt yourself.. never give up.

Nikki Anderson said:



Nikki Anderson said:

Seriously, when you have nerve pain in your teeth, after the nerve has been removed as I have... they will try to make you feel you are crazy, but you are not! Trigeminal neuralgia presents itself in your teeth in many instances, asnd because dental professionals are unaware of it, they will prescribe un-needed surgical procedures. Do not be disheartened, what you need is to see a neurologist, only then will you recieve the respect and understanding we need. Dont give up hope.

julie said:

I STILL HAVE NERVE PAIN ONLY DEEPER AFTER CROWN AND ROOT CANAL! AND WHEN I PUSH ON TOOTH IT STILL HURTS. SO UNLESS NERVE IS DEAD TO BRAIN DOES IT WORK??? THEY HAVE SEARCHED AND XRAYED AND NO

REASON FOR THIS TOOTH TO FEEL ANYTHING.

again, I know you feel it in your teetj,but the tooth nerve is not there. What you are dealing with is the TRIGEMINAL nerve. which serves for all the feeling in each side of your face. If it is crossed by a mis-growing arterial mass then it will cause pain, whether the teeth are there or not. This is why dental professionals only are confudes... they do not understand the nerve past the jawline. Do not feel you are crazy, ever! Sadly, they have removed the nerves in your painfull teeth, not realizing that the problem is actually behind your ear where the trigeminal nerve is being strangled by arteries.

#14

As you said before, the faft that you are feeling pain in a tooth that is no longer there proves, and should prove to your dental pro that this is not a dental issue. the TN issue takes place behind your ear where your terigeminal nerve enters the outer-facial area.

#15

  • I think WE understand that the pain is from the trigeminal nerve and where we often feel the pain is in our teeth and mouths. Besides feeling pain where there is no longer a tooth, another part of my pain is a burning sensation on the roof of my mouth. And yes, dentists are often unaware of the miserable condition known as TN...but not all of them are ignorant. In fact, after going from DDS to oral surgeon to endodontist to ENT to neurologist etc., it was finally my own dentist who diagnosed my TN. And my first MVD got rid of the tooth pain. But alas, it came back after 9 years. But I digress...... what I understood KC to post as her original question was whether she should have dental work done or just get dentures. She is currently in remission & dental work will often exacerbate TN pain (happens to me every time I even get a cleaning).

Nikki Anderson said:

Guess what! Trigeminal neuralgia , although felt in your teeth, has absolutely nothing to do with your teeth! I want you to know that I too, because originally i felt it in my teeth, experienced so much pain and disbelief from professionals that it had a very adverse affect on my life. i began to feel that i was insane becasue every professional told me the pain must be in my mind. After a neurosurgeon took me seriously, and I had an MVD, I woke up with zero pain, over ayear ago and my life has been able to grow and proceed because some astute doctor took a chance. You must make thwem be aware... do not lose teeth for no reason, dont let them feel you are psychologically emoting. It is real.. and you need help/

#16



Not Again said:Alright, If I misunderstood, then i apologize. It actually took a psychiatrist to initiate my diagnosis to my medical and dental professionals which was a very frustratiing situation. However i dont understand why you would consider pulling teeth that are healthy when you know it is an issue that has nothing to do with your teeth. I've found that the teeth pulled before my diagnosis needlessly are sorely missed, and i have issues because of their abscence. Just sayin...

  • I think WE understand that the pain is from the trigeminal nerve and where we often feel the pain is in our teeth and mouths. Besides feeling pain where there is no longer a tooth, another part of my pain is a burning sensation on the roof of my mouth. And yes, dentists are often unaware of the miserable condition known as TN...but not all of them are ignorant. In fact, after going from DDS to oral surgeon to endodontist to ENT to neurologist etc., it was finally my own dentist who diagnosed my TN. And my first MVD got rid of the tooth pain. But alas, it came back after 9 years. But I digress...... what I understood KC to post as her original question was whether she should have dental work done or just get dentures. She is currently in remission & dental work will often exacerbate TN pain (happens to me every time I even get a cleaning).

Nikki Anderson said:

Guess what! Trigeminal neuralgia , although felt in your teeth, has absolutely nothing to do with your teeth! I want you to know that I too, because originally i felt it in my teeth, experienced so much pain and disbelief from professionals that it had a very adverse affect on my life. i began to feel that i was insane becasue every professional told me the pain must be in my mind. After a neurosurgeon took me seriously, and I had an MVD, I woke up with zero pain, over ayear ago and my life has been able to grow and proceed because some astute doctor took a chance. You must make thwem be aware... do not lose teeth for no reason, dont let them feel you are psychologically emoting. It is real.. and you need help/

#17

I completely understand being someone with TN and someone also with bad teeth- honest to god bad teeth, not just TN pain that makes me think it is my teeth. I have had bad teeth since I was a child, I know my grandmother also did, and unfortunately my son does too.

I have had many times when I have had severe pain and not sure if it was my teeth or the TN. But I suggest that you (maybe you already have) go to the dentist, have good x-rays taken and if they say there doesn’t seem to be any decay I tell them, “thank you, I have a facial nerve condition and sometimes I can’t tell what the pain is from.” Then go home and try TN remedies for the pain. If i really need a root canal , cavity or if I ever need several at once, like it sounds you do, I would weigh options carefully. My guess is that either root canals or dentures might not make a difference in the pain since my pain and many stories I hear has no rhyme or reason whether it is from a good tooth, bad tooth, crowned tooth, or area with no tooth.

I wish I could help more, just use your intuition. Please let us know how it goes. Many blessings!

#18

But do they know why MVD's fail? Some fail right after the surgery is done and there was nothing to "trigger" it. It seems (although by no means a correct ) a mvd will fail when it wants to. Whether or not you have work done doesn't matter. Anybody here actually have TN come back after a MVD then dental work? But isn't it possible that you could come out of remission JUST with the root canals? Aren't you dealing with the risk either way?

If you go with root canals:

Will the root canals be in the area where your TN pain is prevalent?

Can you handle the drilling and fitting of crowns?

Your age may also be a factor. Crowns last about 30 years and will have to replaced. How many crowns are going to need to be replaced (those that were done years ago)?

Are you pretty sure you'll have to get dentures in the future and the root canals will only be a long but temporary thing?

What about the future cavities, root canals, pulled teeth you'll have to deal with in the next decades? It's pretty unlikely that you won't have any sort of problems with your teeth in the future. So it's not really about the problem you have now but also all the problems in the future. Will dentures reduce the number of problems in the future?

What about going on a TN drug prior to either procedure as a precaution. Can't hurt and may or may not help. What does your neuro think?

DENTURES

You'll have to deal with the dental pain from removal. Swelling, temp teeth then permanent teeth, fittings and possible irritation and and trigger spots. How about where there are already crowns and the surgeon will have to dig down to get the root out?

You are risking coming out of remission now or MAY risk having to have teeth pulled much later when and if you come out of remission later and then having your teeth pulled while the TN is active.

You're trading one set of problems for another and either way it sucks.

I am very concerned with this issue as I still have most of my teeth but the future.... Anyway, I had a root canal in the area where my TN shows up and it did wake it up but I have NOT had a MVD and was NOT in remission while having this done. My neurologist always tells her patients who are getting root canals to take an extra pill of whatever they are on whenever going to the dentist because with her experience it can have an effect. Now about three weeks ago I had an abscess in an area that I don't have TN pain and went to the dentist and told them that I wanted it pulled. It was a back tooth, and the thought of all the drilling, the temp crown, the drilling for a new crown. I was soooooo tired of it and all that movement in my mouth. The (irritating dental assistant had to tell me that , "oh you won't be able to eat right etc." After telling her I had TN.) She went on. I asked her "Do you even know what TN is?" She left to tell the dentist what I had decided. Now, HE has other TN patients and didn't blink an eye and sent a referral to different oral surgeons. After getting me all prepped. It took the surgeon about 15 seconds to remove the tooth. I ended up getting a dry socket and everyone is telling my that it is extremely painful. It was painful and I took the pain pills, but compared to TN pain, it was more "extremely annoying with some pain." I will NEVER get a bridge or an implant. I'm 45 and can wait but the thought of having a foreign object in my mouth for the next 35 years - uh, not going to happen. And someday I may need dentures and it's an issue.

I think that even thought it's not dental pain, the work triggers dental pain which in turn can trigger the TN pain and it did for me, but only in the region where my TN pain is and only when working in that area. I had no problem when they pulled a tooth from a region where there is no TN pain and I completely understand going with dentures. The thought of all that drilling in my mouth (after 10 root canals and 3 surgeries BEFORE being diagnosed) was too much.

#19

My suggestion to all that have dental problems. Check out your dentist find out how much they know about tn before you make a decision as to what you want done and if possible do your dental work while in remission. A good dentist that knows about TN will work with and get the job done with little delay. But root canal, extraction and other evasive dental work is a big risk expecially if it’s in the area of your tn. May God help us all it’s so much we have to deal with.

#20

mY MY MY GOODNESS Can I relate to you..

I have over the course of six years, now have top and bottom dentures..and yes prior every single tooth in my mouth had crowns, root canals etc...finally extractions. But get this mine were so bad due to the severity of Sjogrens, they surgically removed all the bottoms, did a three cadaver bone graft and then five implants. to the tune of $22,000 bucks..

this was four years ago...I continue to wear the temporary bottom denture with bonding to keep it in place..I am out of money to have further work completed..the tops were removed three years ago and that plate seems to be doing okay with the soft line.

Never would I have dreamed I would have placed that amount of money in my life time in my mouth...

My NHL is in remission and my RA with continued infusions every 6 months...I can only take one day at a time and deal with what comes my way...Options, wow, my friend.....check every angle. Please...

You have my sympathy....bless your heart. I still floss my implant posts and deal with oral yeast infections and do not take those lightly..I did and was slammed with esophagus issues. Take care and contact me if anything further I can assist you....golly I so wish you the best....