I guess I am lucky not haveing what I call the OMG pain all day long. During the day it is what I call “I can tolerate it pain”. The OMG pain hits at bedtime & lasts for at least 2 hours. Doesn’t’t matter if I am laying down or sitting up -it just hits. I have tried oxygen but it is too cold & causes the pain to intensify. Heating pad helps some & has become my new best friend. I have also noticed today that I am starting to have pain on the left side too but not as severe. Can’t wait to have a medicine working .
I find fatigue is a major trigger for me.
Good incentive for daytime naps. If I nap during the day I don’t have the intense pain just a dull pain.