Alcohol and smoking

Hey all - anybody have any feedback on alcohol and smoking and how that affects this blasted condition? My neurologist keeps tellin me that nothing will get better if I don’t quit smoking but I’ve had months of remission while still smoking.


Also, I don't drink a lot but the occassion when I'm out with friends and get a couple extra shots in the pain and trigger points recede dramatically - of course they do - that's not a surprise. I'm just curious if alcohol could be a trigger in itself over the long term.

Hi Todd

i was diognised with TN 2 years ago and after settlign on tablets I was ok for 2 years. I had nights out and drank loads, smoke etc ( like you do when your out, and I was fine. Only now that ive got TN pain again and it wont go away I aint a clue about alcohol or Cigs. Im dying to get better so I can have a good night out. What do you think?
x

Hi Todd, i gave up smoking before i got TN (13 years) so know how hard it is to even bring up the subject! and drinking/socialising for me has definately had to change. Alcohol is a major trigger for me. Even if it doesn’t effect me that night, for me i’ll be feeling the effects 3 days later. I guess it’s an amalgamation of the meds + pain and this condition that makes it so bad - and also the high sugar content in alot of alcohol. Anything thats a stimulant is advised to be avoided, (coffee, sugar, soda’s etc can be some of the triggers for TN sufferers).
I definately feel soooooo much better since reducing my alcohol intake - if i do drink its low alcohol beer and home early. I’ve made a huge lifestyle change since the start of this year - including diet and excercise and believe my pain levels have greatly reduced. Wishing you the best - Susan.

Hi Todd,
Quiting smoking definitely helped reduce the TN - I quit because I had this really bad sinus pain, which, I didn’t know at the time, was the first twinges of TN.
So it helped to stop, becuase the sinuses were being aggravated by the smoke. On top of that, I have been told by more than one surgeon that your body’s healing from surgery will be much retarded by nicotine in your system. It really affects the healing process, apparently. So I was glad that I had stopped prior to my two brain surgeries.
Regarding alcohol, I don’t know how you could be drinking if you are on anti-seizure meds - it is contraindicated. I will have maybe 1/2 a drink if there’s a party, (which I hate, I would give anything to indulge a bit more), but I will definitely not feel well the next day even from that small amount. I also have hydrocephalus, though, so the feeling crappy could be a function of that, since the brain gets dehydrated from alcohol (that’s what causes those nasty hangover headaches). So, unfortunately, abstinence is truly the best route (for me).
Hope you find the happy medium.
Lily

Well I 've had some triggers from smokin…so I have cut down n hopes of quitin but the drinkin …to tell ya the truth…I think it works better than the meds lol… Im serious I told my doc bout it he does know bout long term effects but I think endorphins r release when ur out drinkin & havin a good time…so ur relaxed and well thats my spin on it :slight_smile:

if you have an intraoral trigger in your mouth, smoking would likely be problematic for your condition. however, you indicate you have had remission while smoking, so this seems to not be much of a problem. research has never shown smoking causes TN, nor does it show that the cessation of smoking cures it.



alcohol relaxes the muscles; it is possible you are freeing up irritated nerve endings within the tissues. also, it’s a CNS depressant; everything slows down, including pain signals. you probably find the next day your pain is much lower as well. the brain is a bit dazed and confused from the alcohol, so the signals are not as well received. usually by day 3, everything is back up and running in full force, and the pain is back to where it was.



alcohol itself is not usually a trigger; except for persons with neurovascular pain. this is where TN and headache pain in general gets tricky and more murky; a subject for another time. it helps to explain why some people are bothered by alcohol, and some are not.



sounds like your neurologist is trying to talk you into improving your health. some things will assuredly get better for you, but if you have a vascular compression, TN is probably not one of them.



i’m not a doctor, speak to your own about what i’ve said here.



good luck,



vesper

I used to joke that my favorite drink was ‘more’ and if you got 'em, smoke 'em!

When ‘presciption medications’ tried to kill me…I’ll say (off the record-LOL), that I never met a ‘street drug’ I didn’t like.

“I was so much older then…” bob

I guess I’m the minority here…I find that the warmth of the smoke and the general relaxation from the “act” of smoking is beneficial when I’m having a flare…I don’t drink, so I can’t speak to that one.

Smoker & drinker here. I smoke more when in pain. Drinking alcohol while on TN medication didn’t affect me at all. It didn’t make me sleepy or sick. I had MVD surgery 18 days ago, & all I did was not smoke for 12 hrs. prior to the surgery. MVD surgery so far is a total success…no shocks since waking up from surgery.

I find that a cocktail here and there will help the pain. However, sometimes wine will cause my sinuses to act up which will cause pain. The pharmacist told me a few drinks are ok but not to exceed that.
I don’t smoke so cannot speak to it

It’s interesting to see what everyone has to say on this topic. My husband was recently diagnosed with TN and is an avid home brewer. He finds that a few beers make his pain better for a little while. He is concerned that once he starts anti-convulsive meds he won’t be able to drink anymore which will spoil the fun of home brewing.

HEY AM NOT SURE , BUT I LOVE MY BEER , I DONT SMOKED
BUT NOW I DONT DRINK BECAUSE MY DOC SAY NOT
DONT GET ME WRONG I LOVE MY BEER , NOW I HAVE’NT DRINK
LIKE 1 MONTH, BUT THATS OK I WANT TO GET WELL
MAN I HATED BUT,I WILL DRINK FEW BEERS ON OCCASSIONS SOON I HOPE
HEHE!! WILL LET ME KNOW HOW YOU FEEL GOD BLESS SALLY CHOATE

Strange … aren’t you on meds that you shouldn’t be drinking? Not being smart or anything but most folks having this are on high does of meds.

As for me, I can't drink on this many meds, it would make me sick. But, sometimes I do smoke during an flair up. I know it's bad for my health, and in a perfect world, we all could quit. But, the stress of a flair up causes me to want to light up. Yes, it does seem to have a calming effect.



Stef said:

As for me, I can't drink on this many meds, it would make me sick. But, sometimes I do smoke during an flair up. I know it's bad for my health, and in a perfect world, we all could quit. But, the stress of a flair up causes me to want to light up. Yes, it does seem to have a calming effect.

I am sorry you smoke added with all the other stuff that goes along with this problem. The air in and out from smoking would triggers a attack for me. Just thinking about it scares me to death. I had the surgery do you? I am having triggers again but before they get real bad they stop. Biting into bread or brushing my teeth. Its like a nerve exposed and you can't touch it I have to wait until it stops before I can wipe my face. How long have you had TN? I can't believe this is happening to me-Do you have family to help you if needed?

but your younger than that now, right, Bob!



Bob Snodgrass said:

I used to joke that my favorite drink was 'more' and if you got 'em, smoke 'em!

When 'presciption medications' tried to kill me...I'll say (off the record-LOL), that I never met a 'street drug' I didn't like.

"I was so much older then..." bob