Quantcast

Living With Facial Pain

TN Nerve Ablation


#1

Scheduled tomorrow for TN ablation. This process has helped me get off Baclaphen and Carbamazapine. Still on Gabapentin. This is the 4th time I will be going in for the ‘needle’. Makes me extremely ill for a day but the relief it gives can be months. The actual extreme pain from the TN stops with this process but the process itself causes some weird sensations. It’s a blessing to not have to set a timer multiple times a day to make sure I don’t miss a dose of Gabapentin. The longest relief I’ve received has been 8 months. Shortest, 5 months.
Be well and smile often. (imagine!)
Redbekia


#2

Best of luck to you . Hope for a year or more !!!

omieke


#3

Praying for you. No I can’t imagine smiling without pain. I go back in 2 weeks for decision on what to do. 6 months after gamma knife and very little relief. Repeat gamma knife, surgery, who knows?


#4

Thank you everyone for your well wishes. I made it through and today am experiencing blissful pain relief even in my arthritic hips so must still be blessed by pain meds from yesterday. Wish it would last forever.


#5

Redbekia, hope your ablation went well. When I read your post and you mentioned the needle I looked it up but I couldn’t find an answer to that procedure. I had a rhizotomy 2 years ago and it is a procedure with a needle. I was wondering if it’s the same procedure. Again, I hope your procedure went well. Be blessed. Gloria37


#6

Hi Gloria. I get a glycerol injection into a pocket that the trigeminal nerve goes through. They call it a nerve ablation. The whole side of my face and part of my tongue becomes numb. A blessing. Lasts 4 to 8 months for me so far. This is my fourth time. I struggle with their anesthesia methods that make me horribly ill for 24 hours. This time they simply put me into deep sleep but when I came up I was in deep pain and it took them a bit to balance it. Once they got that under control I have been awesomely wonderful. Numb is so much better than electrocution over and over again. I pray that next time, since I know there will be one, they will have that post anesthesia pain under control also. It all seems to be a learning experience. I like the team and feel like they are really on my side.


#7

Redbekia, thanks for clearing that up for me. I have not had a chance to chat with a lot of people with that procedure. It does sound like just The rhizotomy that I had in 2016 I have not had to repeat but I will definitely do that if the need arises. My procedure was done at John Hopkins Hospital in Maryland , by Dr Lim. I have a brain tumor that is inoperable, it pushes on the Trigeminal nerve. I hope yours will last beyond 8 months this time. Good luck. Let’s keep in touch. Gloria37