Hi everyone. My 13 year-old, strong, athletic boy was diagnosed with TN this week by a paediatric neurologist and an oral pathologist. He is now starting day 3 of gabapentin at max. dose of 3 X 300mg for the first time. He is on 10mg of amitriptyline now to be increased to 25mg at the end of the first week. So far, he has had no pain relief.
His pain is in tooth 36 only. It is very localized and concentrated on this tooth. He has no pain on his face. His gums are sore surrounding the tooth. He has no other symptoms whatsoever. He has constant pain at 8.5/10 and sharp, searing jolts of pain intermittently. We tracked them two days ago at 76 events. They are generally very short. The pain is too much for him to attend school and he is now starting his 3rd missed week. He has stopped all sports/activities too. He said he had a bit of pain about a year ago. Then two weeks before the onset he started complaining about pain in that tooth and asked me to take him to the dentist.
Naturally, I have done nothing but read about TN. His oral pathologist published a paper a while ago about a patient with the exact same symptoms as my son. Just tooth pain, nothing else. A MRI revealed an Intracranial Epidermoid Tumour. It was removed and the patient recovered completely.
We are now just waiting for the MRI. This sounds awful but I really hope it reveals something.
Does anyone have any experience with tumours creating the pain as opposed to TN?