Good morning Andy,
My name is Sandy. I can so relate to what you've experienced! After, trips to the emergency, multiple office visits to my primary Dr., referrals to my ENT, Endocrinologist, months of physical therapy, various medications(Oxcarbazepine, Lyrica) MRI, MRA, Ultra sound, blood work and seeing a neurologist, nobody knew what was wrong! My son and husband could NOT stand to see me live with such excruciating pain so decided to research my symptoms online. It was through their efforts that they found out about GPN and MVD. My son continued to research and found Dr. Mark McLaughlin of Princeton Brain & Spine Care. My son contacted the office immediately! They called back right away said the Dr. could help. I obtained all of my medical records, CD'S, films, etc. and started the insurance authorization! Within a few weeks my husband and I were on our way from Florida (our home) to New Jersey have a consult with Dr. McLaughlin. We arrived in NJ on August 19th, met with Dr. McLaughlin, that day he sent me for blood work. He wondered why my neurologist never ordered a Brain MRI with and without contrast? He said it was imperative that I have one and his office arranged for it to be done asap! I felt that finally I was in the care of a Dr. that could help me!! He is such a humble man, he thanked us for seeking him out and making the trip to be seen by him.
After review of the tests I had undergone, Dr. McLaughlin confirmed that I did have GPN and was confident that performing MVD surgery was in my best interest. Surgery was scheduled for Aug. 28th 7am...I was terrified, yet willing to proceed because of the terrible pain I'd been in! I am so fortunate to say that the surgery was successful !!! Don't get me wrong, I am still experiencing discomfort and pain in my ear, base of my tongue and throat, but it's NOT nearly as bad as it was prior to the surgery. I'm told that recovery period varies per case but that it could take from 4 to 8 weeks. We're back Florida now. Recovery is a day by day process. I was having migraine headaches and trouble swallowing thin liquids, i.e.. water, coffee, tea, the first week after surgery, thankfully only lasted one week! I can swallow, but it is still somewhat painful. I am experiencing some hearing issues, sounds muffled, like when on an airplane when you need to "pop" your ears. Still having some ear pain as well, not bad though, believe me everything is MUCH more tolerable! I have been off of the Oxcarbazepine and Lyrica since the MVD surgery, thank goodness...did NOT like side effects while on them!
If you have anymore questions or concerns, please let me know so I can help,