Funtsie, thanks for your kind reply.
As I read my previous comment, I thought I would clarify my suggestion concerning asking doctors tough questions and whether they have seen a patient with GPN. I’m specifically talking the doctors you choose wile going through the process of trying to find out what illness you have.
When you have a condition like GPN, it can be very difficult to get a proper diagnosis, especially if you don’t live in an area where you have access to top medical care or you happen to have a specialist nearby that by chance has experience with GPN. In my case, years went by where I was diagnosed with conditions like TMJ and atypical facial pain. This led to treatment that did not help.
For those of you who don’t know what “atypical facial pain” is, it’s basically a default diagnosis given when the doctor does not know the cause of your chronic neuropathic pain. Looking back, I should have moved on to a different specialist more quickly after they gave me a diagnosis of atypical facial pain. There are some world renowned doctors that don’t believe atypical facial pain should be used as a diagnosis. There may be some truth in that but I’m not sure I would go that far.
Going back to my point, once you think you have been properly diagnosed, I think its fine to have doctors that don’t have experience with GPN. The doctors you end up choosing at this stage must be committed to learning about GPN and also taking the advice of a say another doctor experienced with GPN. For me, both my primary care doctor and pain management doctor, have never seen a case of GPN. But they have taken the time to learn about GPN and they take the advice of the neurosurgeon who did my MVD, Amin Kassam, MD.
Hopefully my experience will help those out there who are still looking for a proper diagnosis, even if they don’t have GPN.