Ok, sooo here is a short version of my story. I had crazy crazy pain where I always said the pain is deep in my head - like i'm being stabbed with an ice pick but I always said the pain was deep in my head .. yet I also felt like all of my teeth were throbbing and killing me and as well. My attacks would last 1-15 hrs roughly, but it was the burning stabbing continous throbbing kind of pain, not so much the electric zapping. I got diagnosed with having somewhere in between type 1 and type 2 TN. I then got started on gabapentin and carbamezapine, which only worked a few months before they became totally useless. I later on went to have the MVD surgery. I was told they did find a blood vessel compressing the nerve so I thought I was cured. WRONG !! Right after the surgery the pain was worse than ever !!! but eventually settled down a bit. Now 1.5 yrs later I still get the crazy stabbing pain DEEP in my head feeling it through my ear. I recently went back to see my neurologist ( my neurosugeron just wants to cut the nerve which terrifies me )neurologist now thinks I might also have sphenopalatine ganglion neuraglia. Does anyone have that or is anyone familiar with it ?? From what I read and from someone whom I've spoken to about my pain they think it might be geniculate neuralgia based upon the location of my pain being deep in my ear. Does anyone have any experience or knowledge of these two neuralgias ?? If so, is what I described above sound like one of them ???
Thanks in advance !!!