Hi, I've just read an article in the TNA Quarterly Magazine about the newest Great White Hope of TN research - genetic 'modification' to alter your faulty DNA. This posits that TN sufferers have a 'bad gene' which gives them a predisposition to developing TN. So far so plausible. However, the thing I found hardest to swallow in this is that the doctor who was doing this research thought that the high incidence of TN running in families meant that bad genes were "highly likely" to be the culprit. What high incidence???
No-one in my family has had TN - except me. No-one. Not even a distant cousin thrice removed. Likewise, although I've seen a few people scattered around in various forums with a relative - singular - who also has TN, I would not have said this was common by any stretch of the imagination.
So my question is, am I wrong? Have I missed something? Do you all have relatives piled to the rafters suffering along with you?
I want to believe that this research will save me (although it seems VERY far distant right now; I'll probably be dead before it comes to fruition), but I just can't believe in genes as the cause when I see almost no evidence of it anywhere I look. How about it - anyone else in your family a sufferer?
ETA: I'm going to run a tally as we go. So far we've got the following result as of the 16th of March 2015.
8 people out of 20 with one other relative with TN, and one of these with multiple (female) relatives, all with TN. (However, two of the people with a positive family history of TN have unverified anecdotal evidence of ancestors with TN and therefore it is hearsay only)