I just had a glycerol rhizotomy 3 weeks ago with only 1 week of actually being total pain free. This came after I have already had 2 MVDs.
Last night I ate some ice cream for a birthday and not even thinking twice I think the cold is what set me off again. Needless to say I have had enough. I just want to get rid of this nerve. I was looking on the mayfield clinic and came across this, but I don’t know much about it and didn’t see too much on here about it. Is the procedure called something else? Has anyone had this? Does it forever get rid of this? I know being numb forever isn’t ideal. But I’m 27 and have been doing this for over 5 years and just can’t anymore.
Sensory rhizotomy is the irreversible cutting of the trigeminal nerve root at its connection to the brainstem. A small opening is made in the back of the skull. A stimulation probe is used to identify the motor root of the nerve. The motor root, which controls the chewing muscles, must be preserved. The sensory root fibers, which transmit the pain signals to the brain, are severed (Fig. 5). Cutting the nerve causes permanent facial numbness and should only be considered for recurrent pain that has not responded to other treatments.
Anyone’s feedback on the procedure is greatly appreciated!