I’ve read so many times about how TN is worse than labor or as bad and I can only comment on my experiences. I only made it drug free through labor for about 27 hours before I gave in and got the epidural. And then I thought, why didn’t I take this to start! But I realized when I’m having an especially bad episode that is almost constant for days at its worst, the TN1 pain I have I can tell it’s coming even before it gets really strong and then it just builds and builds and builds and lasts for about two to three minutes where I am just having on and then I will get a break. My face will relax. I will thank god and the trees and everything around me for the break in pain and then I will feel it coming again. It’s so much like labor in that way. Does anyone else have that experience?
I just had the second worst time since I got TN in the beginning before any medications. I had to get a tooth pulled because it was very infected. And stupidly, I went on with the change to methadone to a new drug Nucynta a couple days later. I realize now how badly dental affects my TN. I have to get two more caps and we were going to do it in two sittings but I can’t go through it again twice. I barely made it through the last time. The only thing I’m holding onto right now is that it’s gotten so bad because of the dental work and that is why. That this isn’t going to happen all the time. Because honestly I don’t know how to do pain like that everyday at level 10.
I’ve only given pain a 10 twice in my life and i had endometriosis for 30 years, five surgeries, migraines, herniated discs. I was saving the 10 for the absolute worst pain I could think of.
I don’t know if the doctors believe how bad it is because I don’t like to go to the ER. I don’t yell when I am in pain. I sit as quiet as I can. It’s the only way I can do it.
But I don’t think it’s possible for anyone to understand being in this much pain. I’ve cried more in the last four months than I think I have in the last fifteen years. I have a 7 year old. That’s what bothers me the most. That I can’t be there for her like I’m used to being.
Well I didn’t mean to write all this. Guess I had a lot on my mind. I’m just so happy today isn’t as bad.
I hope you all are as pain free as you can be.